AR-Power Patient Powered Research Network
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- STATUS
- Recruiting
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- End date
- Mar 1, 2025
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- participants needed
- 9867
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- sponsor
- Global Healthy Living Foundation
Summary
ArthritisPower is a patient research network and database (registry) to collect prospective information about demographics, self-reported diagnoses and medications, and willingness to participate in research from participants with rheumatoid arthritis (RA), spondyloarthritis (SpA), and other musculoskeletal conditions. Participants will provide information from their smartphones or personal computers. The information will be used by researchers to help patients and their providers make better, more informed decisions about treatment of RA/SpA and other musculoskeletal conditions. ArthritisPower is part of a larger national research network called PCORnet whose 33 network members have mapped their data to a common data model. Network members will be able to submit queries through PCORnet in order to answer a range of comparative effectiveness research questions. Data sharing across PCORnet will be accomplished using secure methods to prevent patient identification. There is no cost to participants for participating and no compensation is provided.
- Objectives
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- To establish a research registry to enable comparative effectiveness research in rheumatic diseases and other musculoskeletal conditions. All data collected using the ArthritisPower mobile app as part of a subject's use is stored with the ArthritisPower registry. This data will be used in conjunction with existing and future research studies.
- To use the data from this study to improve treatment and to further advance finding a cure for rheumatic diseases.
Details
| Condition | Fibromyalgia, Fibromyalgia, Osteopenia, Osteopenia, Ankylosing spondylitis, Ankylosing spondylitis, Psoriasis, Psoriasis and Psoriatic Disorders, Autoimmune disease, Autoimmune disease, Osteoporosis, Osteoporosis, PSORIATIC ARTHRITIS, PSORIATIC ARTHRITIS, JUVENILE RHEUMATOID ARTHRITIS, Rheumatoid Arthritis, Rheumatoid Arthritis, Rheumatoid Arthritis (Pediatric), Scleroderma, Systemic sclerosis, Scleroderma, Myositis, Idiopathic Inflammatory Myopathies, Myositis, Inflammatory bowel disease, Inflammatory bowel disease, Crohn's Disease, Crohn's Disease, Crohn's Disease (Pediatric), Arthritis, Arthritis and Arthritic Pain, Arthritis and Arthritic Pain (Pediatric), Myofascial Pain Syndrome, Gout, Gout (Hyperuricemia), Osteoarthritis, Osteoarthritis, Arthritis and Arthritic Pain, Gout (Hyperuricemia), Psoriasis and Psoriatic Disorders, Rheumatoid Arthritis (Pediatric), Lupus Erythematosus, Arthritis and Arthritic Pain (Pediatric), Crohn's Disease (Pediatric), fibro, Idiopathic Inflammatory Myopathies, degenerative arthritis, muscle inflammation, juvenile idiopathic arthritis, crohns disease, progressive systemic sclerosis |
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| Clinical Study Identifier | NCT03840928 |
| Sponsor | Global Healthy Living Foundation |
| Last Modified on | 23 January 2021 |
How to participate?
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.
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