[ONLINE] Genetic Testing for Common Disorders: Learning from the Experiences of Individuals who were Tested to Determine their Genetic Risk for Alzheimer’s Disease

  • STATUS
    Recruiting
Updated on 17 November 2020
Investigator
Doris T. Zallen
Primary Contact
Online27 (3.6 mi away) Contact
+251 other location

Summary

This study is looking for people who have the APOE-e4 gene, which is associated with a higher risk for developing Alzheimer’s disease. The study is interested in learning about participants’ experiences.

Contact Person
Doris T. Zallen
540-231-4216
dtzallen@vt.edu

IMPORTANT: This communication is meant only to make you aware of an opportunity to participate in a research study. The Alzheimer’s Association cautions against routine genetic testing for Alzheimer’s disease risk. If you are concerned about Alzheimer’s disease or memory changes in yourself or a loved one, the Alzheimer’s Association encourages you to have a frank conversation with your healthcare provider. You can view our full statement on genetic testing at  this link: https://alz.org/media/Documents/genetic-testing-statement.pdf 

Description

Study schedule:
-You will have an interview by telephone. It will take 30-60 minutes.

Study activities may include:
-Completing a telephone interview.

Treatment or experiment details:
-The topics for the interview will be about your experiences in having genetic testing. The interviewer will ask about the short-term and long-term effects of learning that you have the APOE-e4 gene. The interviewer will ask you for suggestions for improving the genetic-testing process itself.
-There is no treatment being tested in this study.

Details
Clinical Study IdentifierTX249059
Last Modified on17 November 2020

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Step 4 Get your study results

Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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