Fox Insight - Online Parkinson's Health and Genetic Study

  • STATUS
    Recruiting
  • End date
    Jan 1, 2030
Updated on 18 November 2020
Investigator
Fox Insight
Primary Contact
www.foxinsight.org (3.6 mi away) Contact
+328 other location

Summary

Fox Insight is an online study gathering health information from tens of thousands of people with and without Parkinson’s disease.  Study participation does not require any travel and all you need is an internet connection to start today at www.foxinsight.org

Fox Insight volunteers are invited to take part in virtual ‘study visits’ every three months.  These study visits consist of questionnaires and surveys on health-related topics.  Just like your first visit to a new doctor, the first study visit takes longer than the rest, but most can be completed in ~20-30 minutes.

In addition to completing the regular surveys and questionnaires, people with Parkinson’s living in the US who complete their first study visit can become eligible to receive access to the 23andMe Health + Ancestry Service at no cost.  This includes free genetic counseling available through Indiana University to help you understand your genetic test results.  Through this opportunity researchers can better understand Parkinson’s and potentially speed scientific breakthroughs.
We also ask participants to share their perspectives on additional topics from time to time that can have a big impact for the research community.  Some ongoing and past survey topics include (1) the usage and effects of cannabis in Parkinson’s disease (2) the economic burden on people with Parkinson’s and their care partners and families, and (3) the use of mindfulness and meditation and its effects on Parkinson’s symptoms

Join today: Register at www.foxinsight.org and if you have any questions, please contact us at info@foxinsight.org.

All data are securely collected, stored and deidentified to protect your privacy. 

Description


Details
Clinical Study IdentifierTX244014
Last Modified on18 November 2020

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Eligibility

How to participate?

Step 1 Connect with a site
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer to help accelerate the development of new treatments and to get notified about similar trials.

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Step 2 Get screened

Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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Step 3 Enroll in the clinical study

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Step 4 Get your study results

Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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