Craniofacial Microsomia: Accelerating Understanding of the Significance and Etiology

  • STATUS
    Recruiting
  • End date
    Aug 31, 2022
  • participants needed
    883
  • sponsor
    Seattle Children's Hospital
Updated on 24 January 2021

Summary

The CAUSE study is a multicenter study, with domestic (n=4) and international (n=6) study sites. Children and young adults (ages 0-18) who have microtia and/or craniofacial microsomia and their parents are invited to participate. Children and parents are asked to provide a DNA sample (blood or saliva) and are asked to upload a few photos of their face. Parents are asked a short interview. Participants are able to participate from home or at one of four domestic sites.

Details
Condition Goldenhar Syndrome, CONGENITAL ANOMALY NOS, Facial asymmetry, Growth Hormone Deficiencies/Abnormalities, Female Hormonal Deficiencies/Abnormalities, Male Hormonal Deficiencies/Abnormalities, Craniofacial Microsomia, Microtia, Birth Defects, Microtia-Anotia, OAV Syndrome, Microtia-Anotia
Clinical Study IdentifierNCT04351893
SponsorSeattle Children's Hospital
Last Modified on24 January 2021

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