Multicenter Registry for Patients With Childhood.Onset Craniopharyngioma, Xanthogranuloma, Cysts of Rathke's Pouch, Meningioma, Pituitary Adenoma, Arachnoid Cysts

  • STATUS
    Recruiting
  • End date
    Jun 30, 2024
  • participants needed
    90
  • sponsor
    Klinikum Oldenburg gGmbH
Updated on 27 April 2022

Summary

KRANIOPHARYNGEOM Registry 2019 will prospectively collect and descriptively analyse data on diagnostics, treatment, and follow-up of patients with craniopharyngioma. In continuation of preceding studies also patients with xanthogranuloma, meningioma, pituitary adenoma, prolactinoma and cystic intracranial malformations will be registered.

Details
Condition Craniopharyngioma, Obesity
Clinical Study IdentifierNCT04158284
SponsorKlinikum Oldenburg gGmbH
Last Modified on27 April 2022

Eligibility

Yes No Not Sure

Inclusion Criteria

Diagnosed with craniopharyngioma for the first time
Age at diagnosis 18 years or less of age
Agreement from patient's parents or legal guardian as well as the patient

Exclusion Criteria

Age at diagnosis over 18 years of age
Diagnosis different from craniopharyngioma
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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