Improving Rental Outcomes Collaborative (IROC) to Improve Health, Longevity and Quality of Life for Children with Kindey Disease

Updated on 11 June 2020


The Improving Renal Outcomes Collaborative (IROC) is a distributed network-based learning health system (LHS) of care centers, clinicians, and researchers partnering with patients who have kidney disease and their caregivers with the ultimate aim of achieving health, longevity and quality of life equivalent to the general population. 

The initial focus will be to apply structured quality improvement methods, advanced information technology systems, and sharing of best practices to track and continuously improve health-related outcomes for children with a kidney transplant nationally. 

In the future we plan to collaborate with the SCOPE dialysis collaborative and relevant research networks to create a network that improves care throughout all phases of a patient’s illness including chronic kidney disease (CKD), dialysis and transplant.


Condition Kidney Transplantation
Clinical Study IdentifierTX228527
Last Modified on11 June 2020


Yes No Not Sure

Inclusion Criteria

• Patients with a functioning kidney transplant who have had an outpatient
visit in the last 18 months
• Patients eligible for transplant within 12 months of study enrollment. This
includes those who have failed a first transplant and are awaiting a second

Exclusion Criteria

• Patients with a failed transplant who are not scheduled for, or expected to
receive an additional transplant within 12 months
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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