The Nephrotic Syndrome Study Network (NEPTUNE)

Updated on 11 June 2020


NEPTUNE consists of two longitudinal observational cohort studies.

  • One of which is following patients with biopsy proven FSGS, MCD or MN (cohort A).
  • The other longitudinal observational cohort study is on children who were recently diagnosed with nephrotic syndrome (cohort B).

There are no drugs or devices involved in this study.


Condition Nephropathy, Kidney Disease (Pediatric), Kidney Disease
Clinical Study IdentifierTX228522
Last Modified on11 June 2020


Yes No Not Sure

Inclusion Criteria

• Biopsy diagnosis of MCD, FSGS, MN
• Kidney biopsy scheduled but not yet completed
• Blood and urine required

Exclusion Criteria

• Solid organ or bone marrow transplant at the time of first kidney biopsy
• Secondary NS (e.g. Vasculitis)
• Clinical or histology evidence of other renal disease
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What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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