Last updated on August 2020

EPIC: An Intervention for Early-stage AD Dyads

Brief description of study

EPIC II (Early-Stage Partners in Care) is a research project designed to assist people with early-stage memory loss and their care partners by providing early-stage related education and skill-training sessions designed to reduce stress, enhance well-being, manage challenges, and plan for the future. Researchers will gather feedback from individuals about their experience to continue to improve programs for early-stage memory loss.

Detailed Study Description

The purpose of this study is to help early-stage individuals who have early-stage memory loss or early stage dementia and their current or future care partners by providing education and skill-training programs designed to reduce stress and distress, increase well-being and quality of life, and plan for the future. About 160 early-stage dyads (person with early-stage dementia and his/her care partner) will be enrolled across Arizona and Nevada through Arizona State University.

People who decide to voluntarily participate in this program, will be asked to:

  • Meet others with memory loss and their care partners.
  • Attend six group sessions (2 hours & 30 minutes each) to learn strategies to help handle new situations, reduce stress, improve mood, communicate better with each other, and plan for the future.
  • Participate in one 90-minute individualized session to address specific issues that may be unique to each dyad's situation.
  • Participate in five 2-hour confidential interviews that involve questions about background, mood, and quality of life.
  • Participate in interviews at the start, and again about 3, 6, 9 and 12 months, to help us to continue to improve the program.
  • Attend several monthly booster sessions after completion of the seven EPIC sessions.

Each person will receive up to $95 for completing all follow-up interviews, or $20- 25 for each interview completed. All participants are offered the EPIC sessions shortly after their first interview or shortly after their 3-month interview. Some participants will also attend an additional free education workshop within one month of the initial assessment.

Clinical Study Identifier: NCT03144921

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Recruitment Status: Open

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