The Use of Technology to Improve MS Clinical Trials and Patient Care
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- STATUS
- Recruiting
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- End date
- Dec 31, 2024
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- participants needed
- 150
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- sponsor
- Johns Hopkins University
Summary
Many patients with multiple sclerosis (MS) experience "relapses" of disease activity during which they have increased numbness, weakness, visual problems, or other symptoms. If a person with MS has new symptoms that are concerning to them, their doctor may want to see them in the office in order to confirm that these symptoms are due to a true "relapse" of activity before starting relapse treatment. This requirement can be frustrating for patients, who may have to take time off from work or travel long distances for such unexpected doctors' visits. In this study, the investigators will use input from patients with MS and MS physicians to create a relapse questionnaire that can be used to confirm a relapse has occurred. The investigators will also evaluate if having a more direct line of communication with the provider's office improves overall patient care and satisfaction.
Description
This research is being done to study if a relapse questionnaire for people with multiple sclerosis (MS) may help more easily determine if a relapse has occurred.
A further goal of this study is to determine if receiving periodic messages from the doctor's office, as well as having the direct contact information of a person in the office, improves the care of the patients and their experience thereof.
Details
| Condition | Multiple Sclerosis |
|---|---|
| Treatment | Communication with the clinic |
| Clinical Study Identifier | NCT02454907 |
| Sponsor | Johns Hopkins University |
| Last Modified on | 27 May 2022 |
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.
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