Social Media-based Active Self-report on Incidence and Outcomes of Adverse Events in NK/TCL Patients

  • End date
    Dec 30, 2022
  • participants needed
  • sponsor
    Rong Tao
Updated on 4 February 2021


The purpose of this study is to collect data from patients by social media and self-report on the adverse events and outcomes happened with patients with extranodal natural killer/T-cell lymphoma, nasal type, who are treated outside of clinical trials in China.


Extranodal natural killer/T-cell lymphoma, nasal type, is a rare subtype of non-Hodgkin lymphoma with relatively high incidence in China. L-asparaginase based chemotherapy are widely used with Chinese patients and has been reported to improve overall response and prolonged the long-term survival in some clinical trials with very limited patients. However, most patients were treated out of clinical trials in China. Therefore the real incidence of adverse events and treatment outcomes are largely unknown. This study is designed to evaluate the incidence of adverse events and treatment outcomes by social media-based (, self-report from patients who are treated out of clinical trials.

Condition Angiocentric T-cell lymphoma
Treatment L-Asparaginase or or Pegaspargase containing chemotherapy
Clinical Study IdentifierNCT03079544
SponsorRong Tao
Last Modified on4 February 2021


Yes No Not Sure

Inclusion Criteria

Gender: Male or Female
Do you have Angiocentric T-cell lymphoma?
Do you have any of these conditions: Do you have Angiocentric T-cell lymphoma??
Do you have any of these conditions: Do you have Angiocentric T-cell lymphoma??
Pathological diagnosis of extranodal natural killer/T-cell lymphoma, nasal type based on WHO 2008 classification of tumors of haematopoietic and lymphoid tissue
Treated with at least one cycle of L-asparaginas or Pegaspargase based chemotherapy
Signed Informed consent

Exclusion Criteria

patients who are enrolled in any other clinical trials
Relapsed patients who were initially treated with non-L-asparaginas or non-pegaspargase based regimens
Clear my responses

How to participate?

Step 1 Connect with a site
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer to help accelerate the development of new treatments and to get notified about similar trials.

You are contacting

Investigator Avatar

Primary Contact


Phone Email

Please verify that you are not a bot.

Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

Learn more

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

Learn more

Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

Learn more

Similar trials to consider


Not finding what you're looking for?

Every year hundreds of thousands of volunteers step forward to participate in research. Sign up as a volunteer and receive email notifications when clinical trials are posted in the medical category of interest to you.

Sign up as volunteer

user name

Added by • 



Reply by • Private

Lorem ipsum dolor sit amet consectetur, adipisicing elit. Ipsa vel nobis alias. Quae eveniet velit voluptate quo doloribus maxime et dicta in sequi, corporis quod. Ea, dolor eius? Dolore, vel!

  The passcode will expire in None.

No annotations made yet

Add a private note
  • abc Select a piece of text from the left.
  • Add notes visible only to you.
  • Send it to people through a passcode protected link.
Add a private note