ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome

  • End date
    Mar 24, 2022
  • participants needed
  • sponsor
    Stanford University
Updated on 24 January 2021
sezary syndrome
mycosis fungoides and sezary syndrome


The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.

Condition Mycosis Fungoides, Lymphoma, cutaneous T-cell lymphoma, Lymphoma, Non-Hodgkin's Lymphoma, non-hodgkin's lymphoma (nhl)
Clinical Study IdentifierNCT02848274
SponsorStanford University
Last Modified on24 January 2021


Yes No Not Sure

Inclusion Criteria

Gender: Male or Female
Do you have any of these conditions: Non-Hodgkin's Lymphoma or cutaneous T-cell lymphoma or Mycosis Fungoides or Lymphoma?
Do you have any of these conditions: cutaneous T-cell lymphoma or Mycosis Fungoides or Non-Hodgkin's Lymphoma or non-hodgkin's lymphoma (nhl) or Lymphoma?
Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center
Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available

Exclusion Criteria

Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage
Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center
Exclude one-time consultation type of new patients
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