Last updated on April 2018

National Collaborative to Improve Care of Children With Complex Congenital Heart Disease


Brief description of study

The purpose of this initiative is to improve care and outcomes for infants with HLHS by expanding the NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, by improving the use of standards into everyday practice across pediatric cardiology centers, and by engaging parents as partners in the process.

Detailed Study Description

The purpose of this initiative is to improve care and outcomes for infants with HLHS by: 1) expanding the established NPC-QIC national registry to gather clinical care process, outcome, and developmental data on infants with HLHS between diagnosis and 12 months of age, 2) improving implementation of consensus standards, tested by teams, into everyday practice across pediatric cardiology centers, and 3) engaging parents as partners in improving care and outcomes.

Clinical Study Identifier: NCT02852031

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UCLA Mattel Children's Hospital

Los Angeles, CA United States
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Primary Children's Hospital

Salt Lake City, UT United States
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University of Florida-UF Health

Gainesville, FL United States
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Phoenix Children's Hospital

Phoenix, AZ United States
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Arkansas Children's Hospital

Little Rock, AR United States
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Seattle Children's Hospital

Seattle, WA United States
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Ochsner Hospital For Children

Jefferson, LA United States
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NYU Medical Center

New York, NY United States
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Johns Hopkins All Children's Hospital

Saint Petersburg, FL United States
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Children's National Medical Center

Washington, D.C., United States
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Texas Children's Hospital

Houston, TX United States
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Children's of Alabama

Birmingham, AL United States
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St. Louis Children's Hospital

Saint Louis, MO United States
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Advocate Children's Hospital

Oak Lawn, IL United States
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Johns Hopkins Hospital

Baltimore, MD United States
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UC Davis Children's Hospital

Sacramento, CA United States
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Norton Children's Hospital

Louisville, KY United States
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Inova Children's Hospital

Falls Church, VA United States
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UVA Children's Hospital

Charlottesville, VA United States
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Children's Hospital Los Angeles

Los Angeles, CA United States
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Recruitment Status: Open


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