Interstitial Lung Disease Registry Construction

  • End date
    Dec 31, 2023
  • participants needed
  • sponsor
    Seoul National University Hospital
Updated on 21 January 2021
pulmonary disease
pulmonary fibrosis
idiopathic pulmonary fibrosis
interstitial lung disease


The purpose of this study is investigating the clinical course, treatment course, and prognosis of patients with interstitial lung disease.


Interstitial lung disease refers to pulmonary disease that occurs in the interstitium of the lung.

It can be broadly classified into lung disease secondary to the cause of systemic disease or drug, and lung disease whose cause is unknown, and the latter is known as idiopathic interstitial pneumonia.

Idiopathic interstitial pneumonia is a lung disease showing various aspects of inflammatory response and fibrosis reaction, and the cause of the onset is not accurately known yet, also there is no effective treatment.

Idiopathic interstitial pneumonia, including idiopathic pulmonary fibrosis, progresses very slowly, but sometimes acute exacerbation without any obvious cause leads to death, rapidly.

Therefore, it is important to collect data prospectively for changes in clinical features, pulmonary function, imaging findings, and quality of life of these patients.

A prospective study of idiopathic interstitial pneumonia will provide important information on the clinical characteristics and admission history of patients with idiopathic interstitial pneumonia, and the idiopathic interstitial pneumonia registry system will serve as the basis for further prospective observational studies.

The aim of this study is to establish the registry of patients with interstitial lung disease and to prospectively review the clinical features and progression of the patients.

Condition Pulmonary Disease, Lung Disease, Pulmonary Fibrosis, Pulmonary Fibrosis, Interstitial lung disease, Lung Disease, interstitial lung diseases
Treatment monitoring changes in clinical symptoms, pulmonary function, and chest radiography
Clinical Study IdentifierNCT03238989
SponsorSeoul National University Hospital
Last Modified on21 January 2021


Yes No Not Sure

Inclusion Criteria

Patients older than 20 years diagnosed with interstitial lung disease
Diagnostic criteria for interstitial lung disease. If one of the following is met
clinical suspicion of idiopathic pulmonary fibrosis (IPF); Characteristic chest CT findings with honeycomb cysts and fibrosis and reasonable clinical signs
suspected interstitial pneumonia, or confirmed by biopsy with no evidence of infection : IPF, Non-specific interstitial pneumonia(NSIP), Cryptogenic organizing pneumonia(COP), unclassified fibrosis
interstitial lung disease suspects with underlying rheumatic disease

Exclusion Criteria

No specific criteria
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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