Last updated on March 2019

EXPLORE: A Natural History Study of Acute Hepatic Porphyria (AHP)


Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions: Acute Hepatic Porphyria
  • Age: Between 12 - 100 Years
  • Gender: Male or Female

Inclusion Criteria:

  • Males and females aged >/= 12 years
  • Diagnosis of AHP [acute intermittent porphyria (AIP), variegate porphyria (VP), hereditary coproporphyria (HCP) and aminolevulinic acid dehydratase (ALAD) deficient porphyria (ADP)]
  • Porphyria attacks in the past 12 months or receiving treatment to prevent attacks
  • Willing to provide written informed consent, medical records, and to comply with study requirements

Exclusion Criteria:

Current participation in a clinical trial of an investigational product

Recruitment Status: Open


Brief Description Eligibility Contact Research Team


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