Germ Cell Tumor and Testicular Tumor DNA Registry

  • End date
    Jan 23, 2024
  • participants needed
  • sponsor
    Memorial Sloan Kettering Cancer Center
Updated on 23 April 2022
germ cell tumor
testicular tumor
Accepts healthy volunteers


This study is being done to create a registry to help us learn more about germ cell tumors (GCT) and other testicular tumors. The registry will include people with these tumors and also relatives and unrelated people without these tumors. This study will help us learn more about the prevention, diagnosis, treatment and outcome of these tumors. Studying relatives of patients and people unrelated to patients with GCT and other testicular tumors will help us understand why some people get these tumors and why some people don't.

Condition Germ Cell Tumor, Testicular Tumor
Treatment Questionnaires, sample of blood or saliva
Clinical Study IdentifierNCT02099734
SponsorMemorial Sloan Kettering Cancer Center
Last Modified on23 April 2022


Yes No Not Sure

Inclusion Criteria

Case Cohort
Must be ≥ 18 years of age AND
Must be an English-speaker AND
Must have a diagnosis or suspicion of germ cell tumor and/or a testicular mass
Family Member Cohort
Must be ≥ 18 years of age AND
Must be an English-speaker AND
Must be a blood relative of the proband. Family members of probands are eligible. These individuals need not have a diagnosis of GCT-TT, as they will be used for segregation analysis of suspected variants found in the proband
Control Cohort
Must be ≥ 18 years of age AND
Must be an English-speaker AND
Must not have a personal history of cancer, with the exception of non-melanoma skin cancer, AND
Must not have a family history of germ cell tumor or testicular tumor AND
Must not be a blood relative of controls enrolled in this study
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How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer to help accelerate the development of new treatments and to get notified about similar trials.

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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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