Last updated on February 2018

The PROspective German NOn-CF bronchiectaSIS Patient Registry


Brief description of study

The purpose of this study is to study the epidemiology of non-CF bronchiectasis (NCFB) and to provide an estimate of the distribution (prevalence) of NCFB etiologies across all different levels of health care as well as real-life data regarding the current management of NCFB in Germany.

Detailed Study Description

  • To study the epidemiology of non-CF bronchiectasis (NCFB) and to provide an estimate of the distribution (prevalence) of NCFB etiologies across all different levels of health care as well as real-life data regarding the current management of NCFB in Germany
    • To establish feasible investigational strategies in order to establish the etiology of NCFB
    • To perform observational research into bronchiectasis, particularly in areas where single center datasets are underpowered, such as in rare etiologies or determining markers of prognosis
    • To promote collaborative clinical, basic and translational research in NCFB between German (and European) centers
    • To provide a registry of well phenotyped patients with NCFB in clinical centers potentially eligible for enrolment into clinical trials
    • To track access to healthcare and cost of caring for patients with NCFB over time

Clinical Study Identifier: NCT02574143

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