Vasculitis Pregnancy Registry (V-PREG)

  • End date
    Dec 30, 2026
  • participants needed
  • sponsor
    University of Pennsylvania
Updated on 30 May 2022
polyarteritis nodosa
takayasu's arteritis
wegener's granulomatosis
churg-strauss syndrome
microscopic polyangiitis
behcet's disease
urticarial vasculitis
cryoglobulinemic vasculitis
central nervous system vasculitis
iga vasculitis
eosinophilic granulomatosis


The purpose of this study is to learn about the experience of women with vasculitis who become pregnant. In particular, the study will consist of several online surveys to assess

  1. each woman's vasculitis severity and pregnancy-related experiences, and
  2. pregnancy outcomes.


The study will consist of several on-line surveys to assess each woman's vasculitis severity, pregnancy-related experiences, and pregnancy outcomes. Participants will be asked to complete questionnaires at study entry, during the second trimester, during the third trimester, and postpartum. Investigators estimate that it will take approximately 20 minutes to complete each survey. The survey is available in Spanish, Portuguese, Italian, and Turkish.

All women enrolled in the Vasculitis Patient-Powered Research Network (VPPRN) (with specified disease, sex, and age inclusion criteria described below) will be invited via email to participate in this on-line study. The survey data will be stored by the Data Management and Coordinating Center (DMCC) at the University of South Florida. Upon conclusion of the study period, the data will be sent to the Study Chairs.

Condition Vasculitis, Behcet's Disease, CNS Vasculitis, Cryoglobulinemic Vasculitis, Eosinophilic Granulomatosis With Polyangiitis (EGPA), Churg-Strauss Syndrome (CSS), Granulomatosis With Polyangiitis (GPA), Wegener's Granulomatosis, IgA Vasculitis, Henoch-Schoenlein Purpura (HSP), Microscopic Polyangiitis (MPA), Polyarteritis Nodosa (PAN), Takayasu Arteritis (TAK), Urticarial Vasculitis, Systemic Vasculitis
Treatment Online questionnaires
Clinical Study IdentifierNCT02593565
SponsorUniversity of Pennsylvania
Last Modified on30 May 2022


Yes No Not Sure

Inclusion Criteria

Women 18 years of age or older with one of the following diseases may take part in the
Behcet's disease
CNS vasculitis
cryoglobulinemic vasculitis
eosinophilic granulomatosis with polyangiitis (Churg-Strauss)
granulomatosis with polyangiitis (Wegener's)
IgA vasculitis (Henoch-Schoenlein purpura)
microscopic polyangiitis
polyarteritis nodosa
Takayasu's arteritis
urticarial vasculitis
Women must be pregnant (self-report) at the time of enrollment into the registry

Exclusion Criteria

Non-English speaking, with the exception of people who speak Spanish, Portuguese, Italian, or Turkish
Unable to provide consent
Clear my responses

How to participate?

Step 1 Connect with a study center
What happens next?
  • You can expect the study team to contact you via email or phone in the next few days.
  • Sign up as volunteer  to help accelerate the development of new treatments and to get notified about similar trials.

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Primary Contact


Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

Learn more

If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

Learn more

Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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