Last updated on May 2019

National Register of Oesophageal Atresia


Brief description of study

The esophageal atresia is a group of birth defects including a break in continuity of the esophagus with or without persistent communication with the trachea (tracheoesophageal fistula), sometimes associated (from 50%) of other malformations (heart, kidney, digestive ...).

The current prognosis for this ailment is good. However he persists a mortality (<10%) and significant morbidity, firstly related malformations (heart, kidney, for example), and secondly with particularly difficult anatomical forms (Forms long defect) .

The prevalence of this condition is estimated to be 1/2500 in 3000 live births, making an estimated 2,500 new cases over to 10 years in France.

The current project aims to set up a national registry (Metropolitan France and Dom Tom) to measure the prevalence of esophageal atresia among live births, phenotypic characteristics, the circumstances of their diagnosis, and their initial future at short-term during the first year of life, at which time occurs the vast majority of deaths and complications in this disease.

Clinical Study Identifier: NCT02883725

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CHU F lix-Guyon

Saint Denis, France
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AP-HP Armand Trousseau

Paris, France
5.5miles
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AP-HP Robert-Debr

Paris, France
5.5miles
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AP-HP CHU Kremlin-Bic tre

Le Kremlin-Bicêtre, France
8.71miles
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