Comprehensive Data Collection and Follow-Up for Patients With Thyroid Parathyroid and Adrenal Disease
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- STATUS
- Recruiting
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- End date
- Oct 23, 2027
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- participants needed
- 15000
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- sponsor
- M.D. Anderson Cancer Center
Summary
The goal of this data review study is to collect data to learn more about thyroid, parathyroid, and adrenal disease.
Description
If participant or participant's child agrees to take part in this study, information from the medical record will be recorded and entered into a research database at MD Anderson. Researchers will use this data to learn more about participant's or participant's child's current or suspected illness, surgery, and/or recovery as well as participant's or participant's child's medical history.
Length of Study Participant's or participant's child's active participation on this study will be over after 15 years.
Follow-Up Phone Calls Starting about 2-3 years after participant's or participant's child's testing and/or diagnosis and/or treatment and continuing for up to 15 years after participant's surgery, a member of the research team will contact participant by phone to follow up and see how participant or participant's child are doing. The first time participant receives a phone call or are asked in the clinic, participant will be asked for participant's verbal consent for participant or, if this is for participant's child, on behalf of participant's child, to speak to the member of the research team before participant or participant's child are asked any questions. After participant agrees, participant or participant's child will be asked a series of questions related to participant's or participant's child's disease (takes about 20-30 minutes) that ask about participant's or participant's child's current medical status and medical history. Each phone call should take 20-30 minutes to complete.
If participant or participant's child are scheduled for a routine clinic visit around the time of participant's or participant's child's next follow-up phone call, the research team member may talk to participant or participant's child in person at that time, or a questionnaire can be mailed to participant or participant's child if needed.
This is an investigational study.
Up to 15,000 patients will be enrolled in this study. All will be enrolled at MD Anderson.
Details
| Condition | Endocrine disorder, endocrinopathy, endocrine disorders, endocrine disease, endocrine diseases |
|---|---|
| Treatment | Data Collection, Follow Up |
| Clinical Study Identifier | NCT03050762 |
| Sponsor | M.D. Anderson Cancer Center |
| Last Modified on | 23 January 2021 |
How to participate?
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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.
Learn moreIf you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.
Learn moreComplete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.
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