Autosomal Dominant Polycystic Kidney Disease Registry. Male/female 18 years of age or older, diagnosed with ADPKD.

Updated on 8 November 2020


Autosomal Dominant Polycystic Kidney Disease Registry. Male/female 18 years of age or older, diagnosed with ADPKD.


The Rogosin Institute Susan R. Knafel Polycystic Kidney Disease Center is establishing a registry for people with polycystic kidney disease to evaluate the factors that may contribute to the progression of kidney disease over time. This confidential registry will include patient history, physical examination and laboratory tests.

You may qualify for this study if you are:

  • Male or female, 18 years of age or older
  • Have been diagnosed with polycystic kidney disease

If you qualify, you will receive at no cost, study related:

  • Physical Examination
  • Electrocardiogram
  • MRI of the abdomen, including kidneys and liver
  • Lab tests including a genetic test to identify your type of polycystic kidney disease

Clinical Study IdentifierTX134065
Last Modified on8 November 2020


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Additional screening procedures may be conducted by the study team before you can be confirmed eligible to participate.

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If you are confirmed eligible after full screening, you will be required to understand and sign the informed consent if you decide to enroll in the study. Once enrolled you may be asked to make scheduled visits over a period of time.

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Complete your scheduled study participation activities and then you are done. You may receive summary of study results if provided by the sponsor.

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