Last updated on May 2019

Atypical Hemolytic-Uremic Syndrome (aHUS) Registry


Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions: Atypical Hemolytic Uremic Syndrome | Atypical Hemolytic-Uremic Syndrome
  • Age: - 100 Years
  • Gender: Male or Female

Inclusion Criteria:

  • Male or female patients of any age, including minors, who have been diagnosed with aHUS
  • Able to give written informed consent. Patient or patient's parent/legal guardian must be willing and able to given written informed consent and the patient (if minor) must be willing to give written informed assent [if applicable as determined by the central Institutional Review Boards/Independent Ethics Committees (IRB/IEC)].
  • ADAMTS13 > 5%, if performed.

Exclusion Criteria:

  • Hemolytic Uremic Syndrome (HUS) only due to Shiga Toxin

Recruitment Status: Open


Brief Description Eligibility Contact Research Team


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