Last updated on August 2018

Firazyr Patient Registry (Icatibant Outcome Survey - IOS)


Brief description of study

The Firazyr and Cinryze Patient Registry is a prospective, observational study designed to document the routine clinical outcomes over time in patients with angioedema treated with Firazyr and/or Cinryze in countries where it is currently approved. The data collected will be used to evaluate the safety of Firazyr and Cinryze in routine clinical practice and as a data source for post-marketing investigations.

Detailed Study Description

The Firazyr and Cinryze patient registry is a multicenter, prospective, observational study for patients treated with Firazyr and/or Cinryze in countries where it is currently approved. The entry of participants in the Firazyr and Cinryze Registry is at the discretion of the physician and the participant and is not a pre-requisite for prescribing Firazyr or Cinryze.

Clinical Study Identifier: NCT01034969

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CHU Angers

Angers Cedex 10, France
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Hospital Bellvitge

L'Hospitalet de Llobregat, Spain
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Royal London Hospital

London, United Kingdom
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Royal Free Hospital

London, United Kingdom
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Royal Victoria Infirmary

Newcastle Upon Tyne, United Kingdom
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Derriford Hospital

Plymouth, United Kingdom
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Campbelltown Hospital

Campbelltown, Australia
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Hotel Dieu

Nantes, France
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CHUS - H. Clinico U. de Santiago

Santiago de Compostela, Spain
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Hospital Universitario de Bellvitge

L'Hospitalet de Llobregat, Spain
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Manchester Royal Infirmary

Manchester, United Kingdom
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Recruitment Status: Open


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