Trial Information

Summary: Memory Disorders Registry

Dementia is a group of symptoms that affect areas of the brain important for memory, speech, daily functioning, mood, and behavior causing irreversible cognitive decline. Often, the symptomatology and known pathology of age-associated memory disorders are very difficult to diagnose and treat through routine laboratory testing. This research study is a long-term, observational patient outcome registry that will collect data in patients with diagnosed memory disorders as well as in those patients with concerns that they may have a memory disorder in order to examine the predictors of treatment outcomes.

When subjects seek care for a memory disorder at Cedars-Sinai, they will receive standard care procedures regardless of participation in study. These standard procedures include lab tests, MRI scan, PET scan, and neuropsychological testing to be charged to insurance. Following initial assessments, subjects wishing to participate in the registry will be asked to return for clinical follow-up visits. In addition, the research team requires the ability to access subject medical records and keep information on file regarding medical visits related to memory disorders. There will be no monetary compensation for participation in this registry.

Patient Inclusion Criteria:

• 18 years of age or older
• Concern about memory problems or told that you have a memory problem such as occurs in Age Associated Memory Impairment, Alzheimer’s disease, Vascular Dementia, Mixed Dementia, Dementia with Lewy Bodies, Fronotemporal Dementia, Parkinson’s disease, or Huntington’s disease
• Seeking care for memory disorder at Cedars-Sinai

Patient Exclusion Criteria:

• Children under the age of 18

If you would like to learn more about participating in this study, please send an e-mail message using the form below.