Trial Information

Summary: Surgical Decision Making in Inflammatory Bowel Disease

This is a study for people with inflammatory bowel disease (IBD; ulcerative colitis, Crohn's colitis, or indeterminate colitis). The purpose of the study is to examine how people with IBD decide to have surgery when a doctor has told them they should think about having their colon (large bowel) removed. This surgery is called a &qout;colectomy&qout; or &qout;proctocolectomy.&qout; Patients will be asked to fill out a questionnaire that takes about 60 to 90 minutes to complete. Questions will be asked about patients' background (age, etc.) and their IBD. They also ask about patients' decision to have surgery or not to have surgery.
Compensation Provided

Patient Inclusion/Exclusion Criteria:

Must have been:
1. Diagnosed with ulcerative colitis, Crohn's colitis, or ideterminate inflammatory bowel disease (IBD)
2. At least 18 years old
3. English Speaking
4. Advised by a doctor within the last 3 years to consider having surgery to remove their colon (&qout;bowel&qout; -- that is, to have a &qout;proctocolectomy&qout; or &qout;colectomy&qout;)
5. May or may not have had the surgery--Participants may have decided to have a colectomy, or they may have decided to refuse or delay having the colectomy

People are excluded from the study if the surgery was to treat an emergency condition, or if they knew they had colorectal cancer before the surgery. People who suspected they might have had colorectal cancer, but who did not know it for sure, are able to participate.

If you would like to learn more about participating in this study, please send an e-mail message using the form below.