Additional Resources for Patients
and Patient Advocates

Please click here for a detailed list of Health Associations.

 

General Resources

  • Acurian (Provides both investigators and patients with information on innovative drug therapies and enables them to register their interest in participating in the drug trial process)
  • AHealthyMe.com (Personalized health and wellness information as well as a database of health articles and reference materials)
  • Alliance for Aging Research (Leading citizen advocacy organization for improving the health and independence of Americans as they age)
  • AOL Web Channels: Health (Learn about illnesses, diseases, medications, treatments, support groups, and more)
  • Canada's Research Based Pharmaceutical Companies (Provides consumer health information, information related to the pharmaceutical industry and a student resource center)
  • Center for Disease Control and Prevention (Promoting health and quality of life by preventing and controlling disease, injury, and disability)
  • Clinical Trials Notification Services (If you've looked over the CenterWatch listings of clinical trials and still haven't found an appropriate clinical trial, sign-up to be notified when new clinical trials are listed)
  • Discovery Health Channel (Provide consumers with information on a range of topics from cancer, pregnancy and kids' health, to diabetes, fitness, asthma and sexual health.)
  • England's Department of Health (Aim to improve and to protect the health and well-being of the people in England)
  • Government Clinical Trial Website (Provides patients, family members and public with current information about clinical research studies)
  • healthfinder® (A key resource for finding the best government and nonprofit health and human services information on the Internet)
  • HealthWeb.org (A collaborative project of several health sciences libraries that provides online educational resources in a wide variety of medical areas)
  • IntelliHealth (Health news and content as well as access to tools and risk assessments)
  • Johns Hopkins Center for Communication Programs (A Searchable Database of Internet Resources in Population, Health and Development)
  • Mayo Clinic Health Oasis (Reliable Health Information for a Healthier Life)
  • MedBroadcast.org (Canada's Source for Health Information)
  • MediLexicon (An online resource containing all pharmaceutical acronyms and abbreviations and their meanings)
  • MEDLINEplus (Extensive information from the National Institutes of Health and other trusted sources on over 500 diseases and conditions)
  • MedWeb (Resource for health associations and consumer health information)
  • National Institutes of Health (Acquire new knowledge to help prevent, detect, diagnose, and treat disease and disability)
  • National Library of Medicine (Online library of medical books, journals, and reports)
  • National Organization for Rare Disorders, Inc. (NORD) (Committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service)
  • NOAH: New York Online Access to Health (Full-text consumer health information in English and Spanish)
  • PDR Getting Well Network

    (Provides reliable answers to important health questions. Use this site to learn more about detecting, preventing, and treating a variety of medical conditions)

     
  • RehabTrials.org (Dedicated to the promotion and support of clinical trials in medical rehabilitation research)
  • Virtual Hospital (General information helping health care providers better care for patients, and helping patients live healthier lives)


Discussion Boards


Cardiology/Vascular Diseases

Dental/Maxillofacial Surgery

Dermatology/Plastic Surgery

Endocrinology

Gastroenterology

Hematology

Immunology/Infectious Diseases

Musculoskeletal

Nephrology/Urology

  • American Liver Foundation (National, voluntary non-profit health agency dedicated to preventing, treating and curing hepatitis and all liver diseases through research, education and support groups)
  • Kidney & Urology Foundation of America (Foundation dedicated to helping millions of Americans - young and old - avoid the debilitating effects of kidney, urinary and related diseases.)
  • Lupus Foundation of America (Dedicated to the improved detection of lupus through increased awareness, alleviation of suffering through service and support, and ultimately, the eradication of lupus through research)
  • Prostate.org (Information on Prostatitis, Benign Prostatic Hypertrophy and Prostate Cancer)
  • Urology Journals (List of journals as well as healthcare and urology links)

Neurology

Obstetrics/Gynecology

  • TheBreastCareSite.com (Provides breast cancer survivors with accurate information about everything from post-surgery options and products to information about insurance and intimacy issues)
  • Endometriosis Association (Provide information and support to females, conducting and promoting research related to endometriosis)
  • The Endometriosis Research Center (ERC) (Raises awareness about Endometriosis throughout the medical and lay communities, offers women the opportunity to participate in research)
  • Living Beyond Breast Cancer (A non-profit educational organization committed to empowering all women affected by breast cancer to live as long as possible with the best quality of life)
  • The North American Menopause Society (Includes information on perimenopause, early menopause, menopause symptoms and long term health effects of estrogen loss)
  • Obgyn.net (A global, physician-reviewed network for doctors, medical professionals, women and the medical industry)
  • SusanLoveMD.com (Information on risk, prevention, and treatment for primary and metastatic breast cancer, as well as issues and information relevant to menopause, hormone replacement therapy, and other mid-life health issues)

Oncology

  • American Cancer Society (Voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service)
  • The Annie Appleseed Project (Acts to inform, educate, advocate and raise awareness for people with cancer, family and friends interested in, or using alternative/complementary cancer therapies (CAM))
  • Aplastic Anemia & MDS International Foundation, Inc. (Information, Educational Materials, Services, treatment studies, news, recent research)
  • Bonetumor.org (An educational web-site for physicians, patients, and friends who are interested in learning about all types of tumors and cancers that affect the skeletal system)
  • TheBreastCareSite.com (Provides breast cancer survivors with accurate information about everything from post-surgery options and products to information about insurance and intimacy issues)
  • Breast Cancer Answers (Resources include a clinical trials matching system, various links, a unique artwork collection from those touched by breast cancer, and personal stories)
  • BioImmune.com (Prevention tips, recent cancer headlines, weekly newsletter, various cancer services, articles, various cancer types searchable by index)
  • Cancer Treatment Research Foundation (CTRF) (Focused on identifying and funding innovative science-based clinical cancer research worldwide)
  • Colorectal Cancer Network (A support network for colorectal cancer that promotes aggressive awareness, screening, early detection programs and legislative actions)
  • Facing Our Risk of Cancer Empowered, Inc. (FORCE) (Non-profit organization for women who are at high risk of getting these cancers due to their family history and genetic status, and for members of families in which a BRCA mutation may be present.)
  • International Myeloma Foundation (Patient seminars, networking, scientific advisors, clinical meetings, newsletter, and news items)
  • The Leukemia and Lymphoma Society (Individualized information for Patients and Family, Donors and Sponsors, Public and Press, Science and Professionals)
  • Living Beyond Breast Cancer (A non-profit educational organization committed to empowering all women affected by breast cancer to live as long as possible with the best quality of life)
  • Lung Cancer Online (Lung cancer resources for people with lung cancer and their families)
  • Melanoma International Foundation (Creates and supports the most effective programs for the prevention, early detection, and treatment of melanoma)
  • Melanoma Patients' Information Page (A noncommercial site founded to provide support and information to melanoma patients and those who care for them)
  • Mesothelioma-Asbestos-Help.com (Online resource dedicated to informing patients about mesothelioma (a rare form of cancer in which malignant cells are found in the mesothelium), treatment options for the cancer, and about the dangers of inhaling asbestos)
  • National Cancer Institute Oncology Clinical Trials Resources for Patients and Health Professionals (Treatment options, clinical trial listings, risks and prevention, recent literature, support resources, index of various cancer types)
  • National Cervical Cancer Coalition Home Page (Health news, survivors, caregivers, NCCC chapters, Early Detection Program, research and treatment, and access to the Medical Advisory Panel)
  • National Children's Cancer Society (A non-profit tax exempt organization whose mission is to provide direct financial support to children with cancer and their families, for expenses related to cancer treatment)
  • National Consortium of Breast Centers (Find breast health facilities and breast professionals across the nation by identifying a name, city or state)
  • OncoLink Cancer News (Information about specific types of cancer, updates on cancer treatments and news about research advances)
  • The Sarcoma Foundation of America (An advocate for increased research to find new and better therapies with which to treat patients with sarcoma)
  • Support for People with Oral and Head and Neck Cancer (SPOHNC) (A self-help organization involved in development of programs of support for head and neck cancer patients)
  • The Walter Payton Cancer Fund (Sponsors the world's most innovative and promising clinical research in complementary medicine and integrative oncology)
  • SusanLoveMD.com (Information on risk, prevention, and treatment for primary and metastatic breast cancer, as well as issues and information relevant to menopause, hormone replacement therapy, and other mid-life health issues)
  • Y-ME National Breast Cancer Organization (Find information about breast cancer, and resources to turn to for support and further assistance)

Ophthalmology

Otolaryngology

Pediatrics/Neonatology

Pharmacology/Toxicology

Psychiatry/Psychology

  • Alcoholics Anonymous (A collection of Alcoholics Anonymous and related information)
  • The Arc (The national organization of and for people with mental retardation and related disabilities and their families)
  • Children and Adults with ADD (Through family support and advocacy, public and professional education, CHADD works to ensure that those with ADD reach their potential)
  • NAMI (National Alliance for the Mentally Ill) (Dedicated to improving the lives of people with severe mental illnesses by providing information through links, news, and other resources)
  • National Mental Health Information Center (For users of mental health services, the general public, providers, and the media in finding information about mental health)
  • The National Sleep Foundation (An independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy)

Pulmonary/Respiratory Diseases

Rheumatology

Trauma/Emergency Medicine

Other Resources

  • Lynx Collaborative Care Network, Inc. (Provides individualized medical research, consulting and advocacy for patients with complex medical conditions)
  • Pillbot.com (Searches daily for prescription drug and medication pricing on
    generic and name-brand drugs and medicine)


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