Pay clinical trial patients back with lay language summaries

Wednesday, November 1, 2017

How do you thank someone for taking part in a clinical trial? Evidence is mounting that an effective way to thank study volunteers is to provide them with a plain-language summary of the trial results. Plain, or lay-language summaries, distill the findings of the clinical trial into a brief summary that is understandable to the general public. Various studies show that most participants want the results of their trial but they are not consistently receiving them. In addition to the results, plain-language summaries provide participants with a greater general understanding of the trial. Providing these summaries is shown to improve the overall satisfaction with trials and a higher likelihood for future clinical trial participation.

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Vivli announces new data sharing platform for clinical trials research

Tuesday, October 10, 2017

The Laura and John Arnold Foundation has recently donated $2 million in funds to Vivli, a Massachusetts nonprofit, for establishing a unique data sharing platform for use in clinical trials.
“This financial support allows us to quickly move to launch the platform in 2018,” said Dr. Ida Sim, Vivli co-founder and technical lead. “Vivli’s technology and coordinated policies and processes will lead to new scientific discoveries from integrating existing datasets.”

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TrialScope expands languages in trial results portal

Tuesday, July 18, 2017

TrialScope, a global leader in patient-centric clinical trial transparency and compliance solutions, announced that the Trial Results Summaries Portal now supports trial summaries in English and seven additional languages: Chinese, French, German, Japanese, Polish, Russian and Spanish.

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Multi-sponsor trial results website launches

Monday, March 13, 2017

It wasn’t that long ago that patients just wandered away after a clinical trial wrapped up, never learning the results of the trial, never knowing whether or not their participation made any difference.

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