AKU Society

PatientsLikeMe, AKU Society to develop first open registry for alkaptonuria patients

Monday, January 14, 2013

PatientsLikeMe, a patient network that helps improve lives and a real-time research platform that advances medicine, and the AKU Society, which helps patients with alkaptonuria (AKU), raises awareness and supports research into its treatment, are working together to create the first open, global registry for patients with AKU, one of the world’s rarest diseases and the first genetic disease discovered.

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