PatientsLikeMe

RWJF awards $1.9M grant to PatientsLikeMe

Monday, February 25, 2013 11:26 AM

PatientsLikeMe, a patient network that improves lives and a real-time research platform that advances medicine, has been awarded a $1.9 million grant from the Robert Wood Johnson Foundation (RWJF) to create the world's first open-participation research platform for the development of patient-centered health outcome measures.

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PatientsLikeMe, AKU Society to develop first open registry for alkaptonuria patients

Monday, January 14, 2013 01:52 PM

PatientsLikeMe, a patient network that helps improve lives and a real-time research platform that advances medicine, and the AKU Society, which helps patients with alkaptonuria (AKU), raises awareness and supports research into its treatment, are working together to create the first open, global registry for patients with AKU, one of the world's rarest diseases and the first genetic disease discovered.

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PatientsLikeMe, Merck collaborate on evaluating psoriasis impact

Friday, August 17, 2012 09:23 AM

PatientsLikeMe, a social networking health site, has entered into a collaboration with global pharmaceutical company Merck to evaluate the impact of psoriasis on patients and to inform a novel approach to improving outcomes.

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BBK, PatientsLikeMe launch online diabetes movement

Friday, October 28, 2011 02:47 PM

BBK Worldwide and PatientsLikeMe have launched CallingAllTypes.com, an online social health initiative for people with type 1 and type 2 diabetes. CallingAllTypes.com is a vehicle for people to share their experiences with diabetes. Within seconds of individuals posting their thoughts, social media outlets including Facebook, YouTube, and Twitter will pick up their words, creating instantaneous viral awareness – a dynamic way to inform the public, including policy makers and health professionals, about the real toll diabetes takes on individuals and families. CallingAllTypes.com will donate $1 to the Atlanta chapter of the American Diabetes Association for each of the first 10,000 visitors who help to create the needed awareness about this condition by posting a comment during the month of November.

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PatientsLikeMe, BBK join forces

Tuesday, June 14, 2011 02:04 PM

PatientsLikeMe, an online health platform, and BBK Worldwide, a healthcare marketing and patient recruitment firm, have formed an alliance to jointly offer their services to pharmaceutical companies and other industry stakeholders interested in enhancing patient recruitment and retention for ongoing and upcoming clinical research studies. 

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Study shows value in social media

Monday, April 25, 2011 12:23 PM

A clinical trial of 596 patients testing whether lithium would slow the progression of Lou Gehrig's disease, also known as amyotrophic lateral sclerosis (ALS), did not have positive results.  However, the findings did show that the use of a social network to enroll patients and report and collect data may be useful for future studies, according to The Wall Street Journal.

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