United States

NCI collaborates with Multiple Myeloma Research Foundation

Friday, September 30, 2016

The National Cancer Institute (NCI) has announced a collaboration with the Multiple Myeloma Research Foundation (MMRF) to incorporate MMRF’s wealth of genomic and clinical data about the disease into the NCI Genomic Data Commons (GDC), a publicly available database that promotes the sharing of genomic and clinical data among researchers and facilitates precision medicine in oncology. The MMRF, located in Norwalk, Connecticut, is the first non-profit to donate information to the GDC, which will include data on more than 30,000 patients who have many other types of cancers by the end of the year. NCI is part of the NIH.

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Barda grants $43.2 million to Sanofi Pasteur for Zika

Thursday, September 29, 2016

Sanofi and its vaccines global business unit Sanofi Pasteur have announced that the Biomedical Advanced Research and Development Authority (BARDA) within the Office of the Assistant Secretary for Preparedness and Response in the U.S. Department of Health and Human Services has agreed to a proposal to fund the manufacture of an inactivated Zika vaccine for phase II development. Sanofi Pasteur committed to researching and developing a vaccine to prevent Zika in February, shortly after the World Health Organization declared an emergency.

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StartUp Health launches StartUp Health Colorado

Tuesday, September 27, 2016

StartUp Health, which is organizing and supporting a global army of Health Transformers, has announced the launch of StartUp Health Colorado, its second Regional Network Affiliate, and a model it pioneered last year with the launch of StartUp Health Finland, to support and connect health innovation hubs around the world.

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CHOP launches Roberts Collaborative for Genetics and Individualized Medicine

Monday, September 26, 2016

The Children’s Hospital of Philadelphia (CHOP) has announced the creation of the Roberts Collaborative for Genetics and Individualized Medicine at CHOP. The $50 million Roberts Collaborative will position CHOP at the forefront of pediatric genetics research and will take a multidisciplinary approach toward diagnostics, clinical management, consulting, therapeutics and research driven by the power of genetics. The Roberts family is the principal source of external funding for this initiative, with a $25 million gift that will facilitate the integration of all clinical departments, divisions and centers for the care of pediatric patients, as well as advance a relentless pursuit of breakthrough cures for childhood disease.

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NIH funds research network focused on HIV-infected youth

Monday, September 26, 2016

The NIH has awarded funding for a research network devoted to the health and well-being of adolescents and young adults with HIV or at risk for HIV infection. The awards, up to $24 million in 2016, provide for three research centers and a data coordinating center that will make up the Adolescent Medicine Trials Network for HIV/AIDS Interventions (ATN).

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HHS provides more information about clinical trials to the public

Tuesday, September 20, 2016

In an effort to make information about clinical trials widely available to the public, the HHS has issued a final rule that specifies requirements for registering certain clinical trials and submitting summary results information to ClinicalTrials.gov. The new rule expands the legal requirements for submitting registration and results information for clinical trials involving FDA-regulated drug, biological and device products. At the same time, the NIH has issued a complementary policy for registering and submitting summary results information to ClinicalTrials.gov for all NIH-funded trials, including those not subject to the final rule.

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Cystic Fibrosis Foundation opens research lab

Tuesday, September 20, 2016

The Cystic Fibrosis Foundation has announced the official opening of a new, one-of-a kind research facility in Lexington, Massachusetts. Operated by Cystic Fibrosis Foundation Therapeutics (CFFT), an affiliate of the CF Foundation, the lab is designed to identify and test potential therapies for rare and common mutations of cystic fibrosis, with the ultimate goal of bringing new treatments to people living with the disease.

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