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Neurology
Alzheimer's Association
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Apparelyzed - Spinal Cord Injury Peer Support
This site was initially created in August 2003, to allow people to buy T-Shirts and other apparel regarding Spinal Cord Injury humour (hence the name, Apparelyzed!). The site has since grown organically into something larger, and now covers Spinal Cord Injury Anatomy, a spinal cord injury discussion forum, SCI Research area as well as a carefully picked links directory.
Autism Society of America
Serving the needs of individuals with autism and their families through advocacy, education, public awareness, and research.
Center for Information and Study on Clinical Research Participation (CISCRP)
Founded in 2003, The Center for Information and Study on Clinical Research Participation (CISCRP) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research participation and the role that each party plays as a participant in the process. CISCRP’s staff and board of advisors have highly diverse backgrounds - from the clinical research, healthcare and advocacy communities. CISCRP’s funding comes from a wide variety of sources including individual donors, government and research institutions, foundations and corporations.
Dystonia Medical Research Foundation
Founded in 1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.
Foundation for Spinal Cord Injury Prevention, Care & Cure (FSCIPCC)
The Foundation for Spinal Cord Injury Prevention, Care & Cure (FSCIPCC) is a non-profit educational group dedicated to the prevention, care and cure of spinal cord injuries through public awareness, education and funding research. Founded by its current Chairman Ronald R. Gilbert, FSCIPCC is committed to improving the quality of care for persons with serious spinal cord injuries and to raising funds that support the search for a cure. FSCIPCC is comprised of victims of spinal cord injuries and their families, persons dedicated to the prevention, care and cure of SCI and professionals who provide free counsel to SCI victims. FSCIPCC serves as an informational exchange and a forum for people who suffer from this infliction. Victims and families of victims are encouraged to talk with one another, to share support and encouragement. The FSCIPCC provides SCI victims with information about: the facts of spinal cord injuries; prevention of SCI injuries; care of SCI victims; onging SCI research for a cure; financing and managing disability-related expenses; liability, compensation and your rights; legal options available; and accessing professionals and organizations that will provide free help and counsel.
Infantile-Spasms.org
This web site, run by parents of a child who was diagnosed with infantile spasms, provides a 'one stop shop' for understandable information on infantile spasms. The site was developed to help other families and professionals when searching for information on infantile spasms.
La Alzheimers Association (Español)
La Alzheimer’s Association es la principal organización voluntaria de la salud en el cuidado, el apoyo y la investigación del Alzheimer. Nuestra misión es eliminar la enfermedad de Alzheimer por medio de la investigación científica; a proporcionar y realizar el cuidado y el apoyo a todos los afectados; y para reducir el riesgo de la demencia a través de la promoción de la salud cerebral.
La Fundación para la Epilepsia (Español)
La Fundación para la Epilepsia se asegura de que las personas que tienen crisis de epilepsia (también conocidos como ataques o convulsiones) puedan participar en todas las experiencias de la vida, a través de la prevención, control y cura de la epilepsia, mediante la investigación, la educación, la defensa y los servicios.
Myelin Project
Aims to accelerate research on myelin repair. Includes introduction, publications, project events.
National Ataxia Foundation
The National Ataxia Foundation is dedicated to improving the lives of persons affected by ataxia through support, education, and research.
National MS Society (Español)
Aquí hallará información sobre diagnóstico y tratamientos, manejo de síntomas y asuntos laborales, así como información para cuidadores y niños. También hallará transmisiones educativas a través de la Internet, libros y enlaces a otros sitios educativos en la Internet. Para nuestras familias bilingües, cada título tiene su traducción en inglés y el enlace a su respectivo informativo (de así haberlo).
National Multiple Sclerosis Society
Provides up-to-date information to individuals with MS, their families, and healthcare providers.
National Neurofibromatosis Foundation, Inc.
Sponsors scientific research, develops programs that will increase public awareness of NF.
National Parkinson Foundation, Inc.
Educate general public and medical practitioners, provide diagnostic and therapeutic services and improve the quality of life for both Parkinson's patients and their caregivers.
National Sleep Foundation (NSF)
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy. Established in 1990, some of NSF's goals are to ensure that: Americans understand that sleep is an important component of their health and safety; that Americans recognize sleep problems and seek treatment; that drowsy driving incidences are reduced so they are rare and an exception; and that new sleep discoveries are made that optimize public health, detection and treatment of sleep disorders, & public health interventions.
National Stroke Association
Search and directory, basic information, prevention.
Neuropathy Association
The Neuropathy Association is the leading national non-profit organization serving the peripheral neuropathy community. We provide support and education, advocate for patients’ interests, and promote research into the causes of and cures for neuropathy.
