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Community Blogs & Support Groups

Health Associations Patient Organizations Blogs & Support

CenterWatch has compiled a list of health-related blogs, communities, and support groups to provide patients and families with easy access to important information on consumer health, diseases, conditions and more. Please check back frequently for more resources as our listings are actively growing. If you would like to recommend a site, please email

A Splintered Mind
a blog for anyone interested in anxiety and ADHD coexisting with depression written by Douglas Cootey

Acute Disseminated Encephalomyelitis Patient Community
Acute Disseminated Encephalomyelitis (ADEM) Survivors Network is a safe and friendly place to connect with other ADEM patients.

ADD/ADHD Patient Community
This site is for people struggling with Attention Deficit Hyperactivity Disorder (ADHD). It provides a safe and friendly place to connect with other ADD/ADHD patients.

All Treatment is a drug rehab center directory and substance abuse information resource.

Alltop Health
Alltop Health collects headlines of all the latest stories from top sites and blogs that cover various health topics and organizes them into individual web pages.

Amyloidosis Support Network
Part of the network of rare disease patient communities, Amyloidosis Support Network is a safe and friendly place to connect with other amyloidosis patients.

Apparelyzed - Spinal Cord Injury Peer Support
This site was initially created in August 2003, to allow people to buy T-Shirts and other apparel regarding Spinal Cord Injury humour (hence the name, Apparelyzed!). The site has since grown organically into something larger, and now covers Spinal Cord Injury Anatomy, a spinal cord injury discussion forum, SCI Research area as well as a carefully picked links directory.

Clinical Research Community by CISCRP
The Clinical Research Volunteers Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Center for Information and Study on Clinical Research Participation.

Debbie's Dream Foundation: Stomach Cancer Blog
Debbie's Dream Foundation strives to help stomach cancer patients, families and caregivers to understand their disease, treatments, and side effects. Check out this blog for new topics to assist you in your fight.

Diabetes Stops Here
Managed by the American Diabetes Association. This is a blog about people affected by diabetes and ways to prevent and manage the disease.

Disabilities Patient Community
United With Disabilities is a safe and friendly place to connect with other people with disabilities and receive support

Dr. Len's Cancer Blog
Dr. Leonard Lichtenfeld, is Deputy Chief Medical Officer for the national office of the American Cancer Society. His blog reflects his knowledge on recognized guidelines for the prevention and early detection of cancer and guidelines for nutrition and physical activity for cancer survivors.

Ehlers-Danlos Syndrome Support
This site is for people struggling with Ehlers-Danlos Syndrome (EDS). The goal is to connect with others. Read others discussions, blogs and comments, start your own discussion or blog and give your input.

Fabry Patient Community
This site is for people struggling with Fabry Disease, to connect with others so you don't feel alone.

Fibromyalgia Support Center
A resource for fibromyalgia information, including what it is, its symptoms, how to treat it, the latest research, as well as dozens of articles on fibromyalgia and chronic fatigue syndrome.
Experiments on battling Gout and living a healthier life. A blog by Spiro Koulouris.

HC Support Network: Support Forum
This is a community for people affected by the herpes and cold sore virus. You can post questions, read articles, get support and talk to people in the live chat room is a resource full of information on specific diseases and overall health. They also offer support for many life- changing conditions.

An active peer-to-peer platform for people affected by various health issues. Join groups about health topics that are important to you, make friends who share your health interests, and control what you share with extensive privacy settings.

Lyme Disease Support Network
This site is for people struggling with Lyme Disease; patients, spouses, parents, siblings and friends.

Narcolepsy Patient Community
This site is for people struggling with Narcolepsy. Living With Narcolepsy is a safe and friendly place to connect with other narcolepsy patients.

National Association for Children's Heart Disorders, Inc
Kids With Heart National Association for Children's Heart Disorders is dedicated to providing support for families affected by congenital heart defects through surgical care packages, local support group meetings, and through an online listserv.

Nephrotic Syndrome Support
Nephrotic Syndrome Support is a dedicated patient-to-patient support community for families affected by Nephrotic Syndrome.

PCOS Challenge
The Support System to Help Women Beat PCOS. Connect With Other Women and Join the Fight Against Polycystic Ovarian Syndrome
PediHeartNet is a private, un-moderated discussion group on the Internet. Its purpose is to provide a means of communication for professionals involved in the care of children with heart disease.

Plastic Surgery Guide provides reliable and up-to-date information about research and studies related to the cosmetic and plastic surgery field. It connects readers to board certified plastic surgeons who are interested in the field.

Rare Connect
Living with a rare disease can be an isolating experience. RareConnect was created by EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders) to provide a safe space where individuals and families affected by rare diseases can connect with each other, share vital experiences, and find helpful information and resources.
A free and secure registry developed by major academic institutions across the country to help connect willing volunteers with researchers who are searching for appropriate volunteers to be placed in their research studies

The American Gastrological Association Journals Blog
A blog on various Gastrological topics are discussed, the author is Kristine Novak, PhD

The Digestion Blog
Information forum and links about intestinal diseases and disorders.

The Musings of a Cancer Research Advocate
A blog written by a 2 time cancer survivor and patient advocate. Focusing on the importance of having educated cancer research advocates working in partnership with scientists and clinicians.

The Sephardic Health Organization for Referral & Education (SHORE)
The Sephardic Health Organization for Referral & Education (SHORE) is a self standing organization comprised of organizations, synagogues, prominent members, physicians, and spiritual leaders from the Sephardic community sharing a common goal of combating Sephardic Jewish genetic diseases.

Things I'd Wish I'd Known: Cancer Caregivers Speak Out
This blog is dedicated to Cancer Caregivers and offers support related to care of cancer patients. It appears on the website for a book of the same name that shares the common lessons derived from interviews with caregivers.

Traumatic Brain Injury Support
This site is for people struggling with Traumatic Brain Injury (TBI), the goal is to connect with others. Read discussions, blogs and comments, start your own Discussion or Blog and give your input.

Patient Email Notification Service

Our free Patient Notification Service automatically e-mails you as soon as a clinical trial is posted that matches the medical and geographic area you specify. Sign up now to start receiving your clinical trial notifications right away. If you host a website or other online resources for patients and would like to share this service with your visitors, please add this link to your site.