Home » Patient Resources » Health Associations
Health Associations Patient Organizations Blogs & Support
For over six decades, the Kidney & Urology Foundation of America, Inc. has dedicated itself to funding research and meaningful programs that touch people and save lives, educating patients and health care providers and identifying at-risk individuals in our communities. KUFA's funding has supported world-renowned nephrology and urology specialists and has educated family doctors who provide care to thousands of families in this country. The Foundation has helped make dialysis widely available to all who need it, helped bring many kidney diseases under control and facilitated in making organ transplants more successful and more accessible to those in need. KUFA leads in the fight against prostate cancer and as forerunners in the early detection and treatment of kidney and urologic diseases. The Foundation will continue to make research and resources accessible to patients, to their families and to their caregivers, and will measure its success by its ability to respond meaningfully and personally to the public.
LAL Solace is a support organization for patients and families affected by Lysosomal Acid Lipase Deficiency; both the early onset (Wolman's Disease) and the late onset (Cholesterol Ester Storage Disease). We provide resources such as education about the disease, clinical trial information, and the ability to share personal stories with other members of the LAL community.
Malecare is a nonprofit grassroots network of cancer patients and clinicians. Established in 1997, Malecare's mission is to help men and their families and friends fight prostate cancer, testicular cancer and male breast cancer via support groups, workshops, research, conferences, publications and counseling; most all available for free and open to the public. We are the world's only men's health organization to focus on gay men and cancer as well as access to health care for underserved members of minority populations.
Firmly committed to curing prostate cancer, the Prostate Cancer Foundation is the leading philanthropic organization funding and accelerating research globally. Since 1993, our unique strategies for identifying and investing in the most promising research programs have generated life-saving results. We channel resources to the world’s top scientific minds—cutting red tape and encouraging collaboration to speed breakthroughs. As a champion for increased government and private support, PCF has helped build a global research enterprise of nearly $10 billion. Through the generous contributions of our donors, we have funded more than 1,500 programs at nearly 200 research centers in 12 countries.
Us TOO International Prostate Cancer Education & Support Network is a grassroots, registered 501(c)(3) non-profit prostate cancer education and support network of 325 support group chapters worldwide, providing men and their families with free information, materials and peer-to-peer support so they can make informed choices on detection, treatment options and coping with ongoing survivorship. The organization was founded in 1990 by five men who had been treated for prostate cancer.
Women Against Prostate Cancer (WAPC) is a new organization developing a grassroots network of women volunteers who have been adversely affected by prostate cancer. The organization at its core has advocates, widows, healthcare professionals, and caregivers that will work in collaboration with other organizations and entities. We aim to provide support for women and their families affected by prostate cancer through providing access to resources and supportive programming. WAPC is setup to be a tool for women to harness the power of their voices as being affected by prostate cancer and advance national and state-based policy, media, and educational efforts.
American Social Health Association
The American Social Health Association is a resource dedicated to improving the health of individuals, families and communities with an emphasis on sexual health and a focus on preventing sexually transmitted diseases.
Association of Reproductive Health Professionals
Dedicated to educating health care professionals and the public on family planning, contraception and other reproductive health issues.
Childhood Liver Disease Research and Education Network: ChiLDREN
The Childhood Liver Disease Research and Education Network (ChiLDREN) is a collaborative team of medical professionals working together to improve the lives of children and families dealing with rare liver diseases.
Urology Care Foundation
The Urology Care Foundation is the world's leading nonprofit urological health foundation—and the official foundation of the American Urological Association. We partner with physicians, researchers, healthcare professionals, patients, caregivers, families and the public to support and improve the prevention, detection and treatment of urological diseases.
Zero: The Project to End Prostate Cancer
Zero is committed to see an end to prostate cancer by promoting awareness of the need for early detection and leveraging public resources for life-saving research.