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Health Associations Patient Organizations Blogs & Support
LAL Solace is a support organization for patients and families affected by Lysosomal Acid Lipase Deficiency; both the early onset (Wolman's Disease) and the late onset (Cholesterol Ester Storage Disease). We provide resources such as education about the disease, clinical trial information, and the ability to share personal stories with other members of the LAL community.
The MAGIC Foundation (MAGIC) is a national non-profit tax exempt organization focusing on growth related issues in children and adult related disorders. With over 600 disorders affecting growth, MAGIC assists with networking and education on a multitude of disorders, including, but not limited to, Growth Hormone Deficiency and all disorders related to growth hormone therapy; renal deficiencies such as CRI; tumors that now require replacement hormone therapy; many syndromes such as Turner Syndrome; Russell Silver Syndrome; McCune-Albright Syndrome; Panhypopituitarism; Congenital Adrenal Hyperplasia (CAH); and many more.
Additional Resources
Can’t Stomach Cancer: The Foundation of Debbie’s Dream
Can't Stomach Cancer: The Foundation of Debbie's Dream is a 501(c)(3) non-profit organization dedicated to raising awareness about stomach cancer, advancing funding for research, and providing education and support internationally to patients, families, and caregivers. CSC seeks as its ultimate goal to make the cure for stomach cancer a reality.
Canadian Liver Foundation
Canadian Liver Foundation (CLF) was the first organization in the world devoted to providing support for research and education into the causes, diagnoses, prevention and treatment of all liver disease.
Celiac Disease Foundation
Celiac Disease Foundation is a non-profit, public benefit corporation dedicated to providing services and support regarding celiac disease and dermatitis herpetiformis, through programs of awareness, education, advocacy and research.
Childhood Liver Disease Research and Education Network: ChiLDREN
The Childhood Liver Disease Research and Education Network (ChiLDREN) is a collaborative team of medical professionals working together to improve the lives of children and families dealing with rare liver diseases.
Esophageal Cancer Awareness Association
ECAA’s mission is to provide outreach for esophageal cancer patients, caregivers, and survivors, to increase public awareness of this disease and to offer education and information in a supportive environment.
European Association for the Study of the Liver (EASL)
EASL is the leading liver association in Europe. They address all diseases of the liver from Hepatitis to liver cancer.
Gastro Esophageal Cancer Foundation Inc.
GastroEsophageal Cancer Foundation, Inc. was founded as a 501c3 non-profit corporation in 2005 by a group of survivors and caregivers. The foundation works to focus national attention on the need to find a cure for gastroesophageal cancer.
HealthLine
Healthline’s mission is improve health through information.
Healthline offers readers and visitors objective, trustworthy, and accurate health information, to promote a healthy lifestyle and facilitate disease prevention, as well as to offer clinically significant, medically reviewed information for those who are seeking answers to their health questions.
Hepatitis Foundation International
HPI is a resource that provides information to promote liver wellness, healthy lifestyles, and help reduce the incidence of preventable diseases.
ILCA: International Liver Cancer Association
The International Liver Cancer Association (ILCA) is the only international organisation devoted exclusively to liver cancer research for experts from all related disciplines.
National Foundation for Celiac Awareness
Through empowerment, education and advocacy, the National Foundation for Celiac Awareness (NFCA) drives diagnoses of celiac disease and other gluten-related disorders and improves the quality of life for those on a lifelong gluten-free diet.
National Pancreas Foundation
The NPF is focused on the research, providing of information and support to people who are suffering from diseases of the pancreas.
National Pancreatic Cancer Foundation
The National Pancreatic Cancer Foundation provides support for all those afflicted with or affected by pancreatic cancer, whether patient or family member, through the use of patient advocacy, educational awareness, early detection research, and direct financial resource support programs, regardless the level of qualification of the patient.
North American Society for Pediactric Gastroenterology, Hepatology, and Nutrition
The mission of the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition is to advance understanding of normal development, physiology and pathophysiology of diseases of the gastrointestinal tract and liver in children, improve quality of care by fostering the dissemination of this knowledge through scientific meetings, professional and public education, and policy development, and serve as an effective voice for members and the profession.
The American Gastroenterological Association
The American Gastroenterological Association is the trusted voice of the GI community. Founded in 1897, the AGA has grown to include 17,000 members from around the globe who are involved in all aspects of the science, practice and advancement of gastroenterology.
The Gastro-Intestinal Research Foundation
The Gastro-Intestinal Research Foundation (GIRF) is a not-for-profit organization dedicated to raising funds for clinical and laboratory research in digestive diseases in the Gastroenterology Section at the University of Chicago Medical Center.
