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Health Associations Patient Organizations Blogs & Support

1002 Lititz Pike #229
Lititz PA 17543

FEATURED RESOURCE: Information for Patients

The American Sleep Association (ASA) is an organization dedicated to improving public awareness about sleep disorders and sleep health, promoting sleep medicine research, and providing a portal for communication between patients, physicians, healthcare professionals, corporations, and scientists.

PO Box 600
Doylestown PA 18901
Phone: 1-844-DEMENTIA (844-336-3684)

FEATURED RESOURCE: Definitions of Various Dementias

Dementia Society of America® (DSA) is the leading all-volunteer, all-Dementias nonprofit organization in the United States. Our mission is to significantly raise awareness to the spectrum of conditions collectively known as Dementia. To make available non-medical, easy-to-understand Dementia education materials and resources, and to provide quality-of-life programs for those who live with Dementia, and their caregivers.

8301 Professional Place
Landover MD 20785
Phone: (800) 332 1000
Fax: 1-301-577-2684

FEATURED RESOURCE: Managing Your Epilepsy

The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families.

PO Box 742
Middleburg VA 20118
Phone: (540) 687-8077
Fax: (540) 687-8066

FEATURED RESOURCE: Epilepsy and Staying Safe

The Epilepsy Therapy Project is a non-profit organization whose mission is to advance new treatments for people living with epilepsy. ETP helps scientists develop new drugs and brain stimulators to treat epilepsy. The goal is to fast-track great ideas into treatments to reach people as fast as possible. ETP also sponsors providing the most comprehensive information about epilepsy on the Internet.

485 Half Day Road, Suite 200
Buffalo Grove IL 60089
Phone: (847) 883-9942
Fax: (847) 883-9960

FEATURED RESOURCE: Treatment and Therapy

The Foundation for Peripheral Neuropathy is a private foundation committed to fostering collaboration among today's most gifted neuroscientists and physicians, who are dedicated to neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and one day find a cure for Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunities to dramatically improve the lives of those living with this debilitating disease.

706 Haddonfield Road
Cherry Hill NJ 08002
Phone: (800)532-7667
Fax: (856) 661-9797

FEATURED RESOURCE: Overall Wellness and your MS

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis (MS). MSAA provides ongoing support and direct services to individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles.

6350 North Andrews Avenue
Ft. Lauderdale FL 33309-2130
Phone: (888) 673-6287
Fax: (954) 938-8708


Dedicated to helping create "A Brighter Tomorrow" for those with MS, the Multiple Sclerosis Foundation offers a wide array of free services including: national toll-free support, educational programs, homecare, support groups, assistive technology, publications, a comprehensive website, and more to improve the quality of life for those affected by MS.

2200 Glassell Street, Suite A
Orange CA 92865
Phone: (714) 921-0150
Fax: (714) 921-6920

FEATURED RESOURCE: Understanding Fibromyalgia

The National Fibromyalgia Association is a nonprofit organization whose mission is: To develop and execute programs dedicated to improving the quality of life for people with Fibromyalgia by increasing the awareness of the public, media, government and medical communities.

9707 E. Easter Lane
Englewood CO 80112
Phone: 800-STROKES
Fax: (303) 649-1328

FEATURED RESOURCE: Stroke Multimedia Resource Library

National Stroke Association is reaching new heights in stroke. As the preeminent organization committed to fighting stroke in this country, NSA is providing unprecedented national expertise and leadership for those at risk, suffering or recovering from this devastating condition.

670 Newfield Street, Suite B
Middletown CT 06457
Phone: (800) 910-2462

FEATURED RESOURCE: Chronic Pain Support Groups

U.S. Pain Foundation is a non-profit organization dedicated to serving those who live with pain conditions and their care providers. The mission of the organization to connect, inform, empower and advocate for the pain community.

1610 14th St NW Suite 300
Rochester MN 55901
Phone: 507-287-6465
Fax: 507-287-6312

FEATURED RESOURCE: Treatment Options

The Willis-Ekbom Foundation is a non-profit organization providing the latest information about WED/RLS. The goals of the Foundation are to increase awareness, improve treatments, and through research, find a cure for WED/RLS, a condition which severely affects the lives of millions of individuals. Incorporated since 1992.

Additional Resources

Alzheimer's Association
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.

CFIDS Association for America
The CFIDS Association of America is the largest and most active charitable organization dedicated to chronic fatigue syndrome (CFS), also known as chronic fatigue and immune dysfunction syndrome (CFIDS).

Christopher & Dana Reeve Foundation
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.

National Sleep Foundation (NSF)
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy.

Neuropathy Association
The Neuropathy Association is the leading national non-profit organization serving the peripheral neuropathy community.  We provide support and education, advocate for patients’ interests, and promote research into the causes of and cures for neuropathy.

Power of Pain
The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions including Reflex Sympathetic Dystrophy (RSD), Diabetic Neuropathy, Lyme Disease, MS, and Post Cancer Pain.

The Brain Injury Recovery Network
The Brain Injury Recovery Network is non-profit organization dedicated to helping survivors and families of brain and other serious injuries. The Brain Injury Recovery Network is a 501(c)(3) tax exempt non-profit corporation.

The CERN Foundation
The CERN Foundation is comprised of a dedicated group of scientists and adult and pediatric neuro-oncologists working to find new treatments for ependymoma, a type of brain tumor.

US Pain Foundation
U.S. Pain Foundation is a non-profit organization dedicated to serving those who live with pain conditions and their care providers. The mission of the organization to connect, inform, empower and advocate for the pain community.