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Health Associations Patient Organizations Blogs & Support
The Epilepsy Foundation of America® is the national voluntary agency dedicated solely to the welfare of the almost 3 million people with epilepsy in the U.S. and their families.
The Epilepsy Therapy Project is a non-profit organization whose mission is to advance new treatments for people living with epilepsy. ETP helps scientists develop new drugs and brain stimulators to treat epilepsy. The goal is to fast-track great ideas into treatments to reach people as fast as possible. ETP also sponsors epilepsy.com providing the most comprehensive information about epilepsy on the Internet.
The Foundation for Peripheral Neuropathy is a private foundation committed to fostering collaboration among today's most gifted neuroscientists and physicians, who are dedicated to neuropathy research and treatment to develop new and effective therapies that can reverse, reduce and one day find a cure for Peripheral Neuropathy. It is our ultimate goal to utilize every means and opportunities to dramatically improve the lives of those living with this debilitating disease.
LAL Solace is a support organization for patients and families affected by Lysosomal Acid Lipase Deficiency; both the early onset (Wolman's Disease) and the late onset (Cholesterol Ester Storage Disease). We provide resources such as education about the disease, clinical trial information, and the ability to share personal stories with other members of the LAL community.
The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis (MS). MSAA provides ongoing support and direct services to individuals with MS and the people close to them. MSAA also serves to promote greater understanding of the needs and challenges of those who face physical obstacles.
Dedicated to helping create "A Brighter Tomorrow" for those with MS, the Multiple Sclerosis Foundation offers a wide array of free services including: national toll-free support, educational programs, homecare, support groups, assistive technology, publications, a comprehensive website, and more to improve the quality of life for those affected by MS.
MSIF is a unique collaboration of national MS societies and the international scientific community. Its mission is to lead the global MS movement to improve the quality of life of people affected by MS today and to stimulate research into the understanding and treatment of MS by tomorrow.
The National Fibromyalgia Association is a nonprofit organization whose mission is: To develop and execute programs dedicated to improving the quality of life for people with Fibromyalgia by increasing the awareness of the public, media, government and medical communities.
National Stroke Association is reaching new heights in stroke. As the preeminent organization committed to fighting stroke in this country, NSA is providing unprecedented national expertise and leadership for those at risk, suffering or recovering from this devastating condition.
The Restless Legs Syndrome Foundation is a non-profit organization providing the latest information about RLS. The goals of the Foundation are to increase awareness, improve treatments, and through research, find a cure for RLS, a condition which severely affects the lives of millions of individuals. Incorporated since 1992.
To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
CFIDS Association for America
The CFIDS Association of America is the largest and most active charitable organization dedicated to chronic fatigue syndrome (CFS), also known as chronic fatigue and immune dysfunction syndrome (CFIDS).
Childhood Liver Disease Research and Education Network: ChiLDREN
The Childhood Liver Disease Research and Education Network (ChiLDREN) is a collaborative team of medical professionals working together to improve the lives of children and families dealing with rare liver diseases.
Christopher & Dana Reeve Foundation
The Reeve Foundation is dedicated to curing spinal cord injury by funding innovative research, and improving the quality of life for people living with paralysis through grants, information and advocacy.
National Sleep Foundation (NSF)
The National Sleep Foundation (NSF) is an independent nonprofit organization dedicated to improving public health and safety by achieving understanding of sleep and sleep disorders, and by supporting education, sleep-related research, and advocacy.
The Neuropathy Association is the leading national non-profit organization serving the peripheral neuropathy community. We provide support and education, advocate for patients’ interests, and promote research into the causes of and cures for neuropathy.
Power of Pain
The Power of Pain Foundation’s mission is to educate and show support for Chronic Pain Patients, specifically those with Neuropathy Pain conditions including Reflex Sympathetic Dystrophy (RSD), Diabetic Neuropathy, Lyme Disease, MS, and Post Cancer Pain.
The Brain Injury Recovery Network
The Brain Injury Recovery Network is non-profit organization dedicated to helping survivors and families of brain and other serious injuries. The Brain Injury Recovery Network is a 501(c)(3) tax exempt non-profit corporation.
The CERN Foundation
The CERN Foundation is comprised of a dedicated group of scientists and adult and pediatric neuro-oncologists working to find new treatments for ependymoma, a type of brain tumor.