Last updated on November 2016

Lipodystrophy Connect Patient Registry

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions: Lipodystrophy
  • Age: - 100 Years
  • Gender: Male or Female
  • Other:
    Adults, > 18 years of age, with a diagnosis or suspected diagnosis of lipodystrophy,
    who are willing and able to provide informed consent, or for whom a legally
    authorized representative gives permission on behalf of the person to participate.
    Minors (less than 18 years of age) with a diagnosis of lipodystrophy with a parent(s)
    or legally authorized representative who provides informed consent to participate and
    enter registry information on behalf of the minor. Note: Minors who are 7-17 years of
    age will be asked to provide assent to participate.
    Adults > 18 years of age, without lipodystrophy, who are willing and able to provide
    informed consent and are family members of patients diagnosed with familial partial
    lipodystrophy (FPL) or congenital generalized lipodystrophy (CGL) and want to provide
    information about themselves.

You may not be eligible for this study if the following are true:

  • A person who does not have a suspected or confirmed diagnosis of Lipodystrophy.
    A person who has a known diagnosis of HIV-associated Lipodystrophy.

Recruitment Status: Open

Brief Description Eligibility Contact Research Team

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