Last updated on May 2018

Lipodystrophy Connect Patient Registry

Are you eligible to participate in this study?

You may be eligible for this study if you meet the following criteria:

  • Conditions: Lipodystrophy
  • Age: - 100 Years
  • Gender: Male or Female

Inclusion Criteria:

  • Adults, > 18 years of age, with a diagnosis or suspected diagnosis of lipodystrophy, who are willing and able to provide informed consent, or for whom a legally authorized representative gives permission on behalf of the person to participate.
  • Minors (less than 18 years of age) with a diagnosis of lipodystrophy with a parent(s) or legally authorized representative who provides informed consent to participate and enter registry information on behalf of the minor. Note: Minors who are 7-17 years of age will be asked to provide assent to participate.
  • Adults > 18 years of age, without lipodystrophy, who are willing and able to provide informed consent and are family members of patients diagnosed with familial partial lipodystrophy (FPL) or congenital generalized lipodystrophy (CGL) and want to provide information about themselves.

Exclusion Criteria:

  • A person who does not have a suspected or confirmed diagnosis of Lipodystrophy.
  • A person who has a known diagnosis of HIV-associated Lipodystrophy.

Recruitment Status: Open

Brief Description Eligibility Contact Research Team

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