Last updated on November 2017

Enroll-HD: A Prospective Registry Study in a Global Huntington's Disease Cohort


Brief description of study

Enroll-HD: A Prospective Registry Study in a Global Huntington's Disease Cohort

Detailed Study Description

Enroll-HD is a longitudinal, observational, multinational study that will integrate two existing Huntington's Disease (HD) registries, REGISTRY in Europe and COHORT in North America and Australia, while also expanding to include sites in Latin America and Asia. With no end date and annual assessments, the goal of Enroll-HD is to build a large and rich database of prospective and systematically collected clinical research data (demography, clinical features, family history, genetic characteristics) and biological specimens (blood) from individuals with manifest HD, unaffected individuals known to carry the HD mutation or at risk of carrying the HD mutation, and control research participants (e.g., spouses, siblings or offspring of HD mutation carriers known not to carry the HD mutation).

Clinical Study Identifier: TX7148

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EvergreenHealth Research Program

EvergreenHealth Research Program
Kirkland, WA USA
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