Last updated on November 2017

Natural History and Biospecimen Repository for Dystonia


Brief description of study

Natural History and Biospecimen Repository for Dystonia

Detailed Study Description

Dystonia is a disorder characterized by excessive involuntary contraction of muscles with repetitive and patterned movements. The primary focal dystonias are the most common type of dystonia and include Limb dystonias (like writer's cramp), Cervical dystonia (spasmodic torticollis), Laryngeal dystonias (like spasmodic dysphonia), and Craniofacial dystonias (like blepharospasm). The purpose of this study is to create resources to help learn more about the primary focal dystonias and to develop and validate various dystonia rating scales.

Subjects of this study will be asked to complete a neurological exam which will be videotaped, complete some questionnaires, and donate a blood sample. A subset of subjects will be asked to return annually for a one hour visit.

Clinical Study Identifier: TX7141

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EvergreenHealth Research Program

EvergreenHealth Research Program
Kirkland, WA USA
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