Last updated on February 2016

International Collaborative Gaucher Group (ICGG) Gaucher Registry


Brief description of study

The ICGG Gaucher Registry is an ongoing, international multi-center, strictly observational program that tracks the routine clinical outcomes for patients with Gaucher disease, irrespective of treatment status. No experimental intervention is involved; patients in the Registry undergo clinical assessments and receive care as determined by the patient's treating physician. The objectives of the Registry are: - To enhance the understanding of the variability, progression, and natural history of Gaucher disease with the ultimate goal of better guiding and assessing therapeutic interventions; - To provide the Gaucher medical community with recommendations for monitoring patients and to provide reports on patient outcomes to help optimize patient care; and - To evaluate the long-term effectiveness of Cerezyme.

Clinical Study Identifier: NCT00358943

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Investigational Site Number 840042
Sacramento, CA United States
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Tampa, FL United States
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Boston, MA United States
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Helena, MT United States
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Morristown, NJ United States
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Paterson, NJ United States
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Cleveland, OH United States
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Dublin, OH United States
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Investigational Site Number 151002
Adelaide, Australia
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Parkville, Australia
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Porto Alegre, Brazil
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São Paulo, Brazil
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Halifax, Canada
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Beijing, China
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Ash Sharqia, Egypt
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Cairo, Egypt
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Cairo, Egypt
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Cairo, Egypt
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ANGERS Cedex 01, France
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ANGERS Cedex 01, France
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Montpellier, France
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Montpellier, France
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TOURS Cedex 9, France
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Kowloon, Hong Kong
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Catania, Italy
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Genova, Italy
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Genova, Italy
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Milano, Italy
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Milano, Italy
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Modena, Italy
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Monza (MB), Italy
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Monza, Italy
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Napoli, Italy
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Padova, Italy
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Roma, Italy
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Udine, Italy
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Abeno-ku, Japan
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Chiba, Japan
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Setagaya, Japan
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Yonago-shi, Japan
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Busan, Korea, Republic of
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Daejeon, Korea, Republic of
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Jeju-si, Korea, Republic of
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Jeonnam, Korea, Republic of
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Seoul, Korea, Republic of
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Seoul, Korea, Republic of
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Seoul, Korea, Republic of
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Seoul, Korea, Republic of
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Seoul, Korea, Republic of
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Seoul, Korea, Republic of
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Seoul, Korea, Republic of
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Seoul, Korea, Republic of
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Jalan Pahang, Malaysia
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Arequipa, Peru
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Manila, Philippines
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Singapore, Singapore
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Bratislava, Slovakia
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Sandton, South Africa
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Borås, Sweden
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Norrköping, Sweden
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Bangkok, Thailand
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Bangkok, Thailand
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Bangkok, Thailand
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