Last updated on February 2018

Long QT and Hearing Loss Registry


Brief description of study

The purpose of this study is to determine the true incidence of long QT (LQT) amongst a large cohort of subjects diagnosed with unilateral (right/left) or bilateral sensorineural hearing loss.

Detailed Study Description

The purpose of this study is to determine the true incidence of long QT (LQT) amongst a large cohort of subjects diagnosed with unilateral (right/left) or bilateral sensorineural hearing loss.

The goal of this study is to answer the following questions:

  1. What is the incidence of an abnormal ECG (QTc > 450 msec) in neonates greater than a week of age with either unilateral or bilateral Sensorineural hearing loss?
  2. What percentage of neonates greater than one week of age with either bilateral or unilateral sensorineural hearing loss and an abnormal ECG have an identifiable genetic mutation?
  3. What is the incidence of an abnormal genetic mutation consistent with long QT regardless of the ECG in neonates with bilateral sensorineural hearing loss?

Clinical Study Identifier: NCT02082431

Contact Investigators or Research Sites near you

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Amy Kelleher, MSHS

Jack Jacob
Anchorage, AK United States
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Gregory Martin, MD

Banner Good Samaritan Hospital
Phoenix, AZ United States
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Kartik Mody, MD

St. Joseph's Hospital & Medical Center
Phoenix, AZ United States
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Patricia lake, AuD

Lawrence and Memorial Hospital
Waterford, CT United States
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Martin Anyebuno, MD

Swedish American Hospital
Rockford, IL United States
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Michael Holliday, MD

Alexandria Hospital- Inova Health System
Alexandria, VA United States
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Jill Young, AuD

Pediatrix Audiology Services
Fairfax, VA United States
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