Last updated on November 2017

Autosomal Dominant Polycystic Kidney Disease Registry. Male/female 18 years of age or older, diagnosed with ADPKD.


Brief description of study

Autosomal Dominant Polycystic Kidney Disease Registry. Male/female 18 years of age or older, diagnosed with ADPKD.

Detailed Study Description

The Rogosin Institute Susan R. Knafel Polycystic Kidney Disease Center is establishing a registry for people with polycystic kidney disease to evaluate the factors that may contribute to the progression of kidney disease over time. This confidential registry will include patient history, physical examination and laboratory tests.

You may qualify for this study if you are:

  • Male or female, 18 years of age or older
  • Have been diagnosed with polycystic kidney disease

If you qualify, you will receive at no cost, study related:

  • Physical Examination
  • Electrocardiogram
  • MRI of the abdomen, including kidneys and liver
  • Lab tests including a genetic test to identify your type of polycystic kidney disease

Clinical Study Identifier: TX16038

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Stephanie L. Donahue

The Rogosin Institute
New York, NY USA
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