Last updated on May 2017

Connect MDS/AML Disease Registry


Brief description of study

The purpose of the Connect® MDS/AML Disease Registry is to provide unique insights into treatment regimens and sequencing of these regimens as they relate to clinical outcomes of patients with newly diagnosed MDS, ICUS or AML in routine clinical practice and evaluate molecular and cellular markers that may provide further prognostic classification and/or might be predictive of therapy outcomes.

Detailed Study Description

This Disease Registry will collect data on patient characteristics, treatment patterns and clinical outcomes. The objective is to describe how newly diagnosed MDS, ICUS or AML patients are treated; and to build a knowledge base regarding the effectiveness and safety of front-line and subsequent treatment regimens in both community and academic settings. Enrolled patients will receive treatment and evaluations for MDS, ICUS or AML according to the standard of care and routine clinical practice at each study site. All treatments that patients receive for MDS, ICUS or AML will be recorded, including initial treatment and any subsequent therapy. Data on treatment outcomes, including response rates as measured by the treating physician, evidence of progression, survival, and patient-reported outcomes will be collected quarterly on the electronic CRF.

Clinical Study Identifier: NCT01688011

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Melissa Nifenecker

ONCOLOGY SPECIALTIES, PC - Clearview Cancer Institute
Huntsville, AL United States
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Melissa Nifenecker

DCH Health System (Lewis and Faye Manderson Cancer Center)
Tuscaloosa, AL United States
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Melissa Nifenecker

Arizona Oncology
Phoenix, AZ United States
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Melissa Nifenecker

The University of Arizona Cancer Center
Tucson, AZ United States
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Melissa Nifenecker

Highlands Oncology Group
Fayetteville, AR United States
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Melissa Nifenecker

Mercy Hospital Fort Smith
Fort Smith, AR United States
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Melissa Nifenecker

Genesis Cancer Center
Hot Springs, AR United States
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Melissa Nifenecker

Clopton Clinic of Jonesboro, Inc.
Jonesboro, AR United States
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Melissa Nifenecker

NEABC- Fowler Family Center for Cancer Care
Jonesboro, AR United States
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Melissa Nifenecker

CARTI
Little Rock, AR United States
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Melissa Nifenecker

Sutter East Bay Hospitals (dba Jordan Research and Education Institute - REDI)
Berkeley, CA United States
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Melissa Nifenecker

John Muir Clinical Research Center
Concord, CA United States
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Melissa Nifenecker

Robert A. Moss, M.D.,F AC.P, Inc
Fountain Valley, CA United States
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Melissa Nifenecker

VA Central California Health Care System
Fresno, CA United States
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Melissa Nifenecker

Marin Cancer Care
Greenbrae, CA United States
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Melissa Nifenecker

UCSD Moores Cancer Center
La Jolla, CA United States
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Melissa Nifenecker

Pacific Cancer Care
Monterey, CA United States
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Melissa Nifenecker

Valley Medical Oncology Consultants
Pleasanton, CA United States
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Melissa Nifenecker

Mercy Cancer Center
Sacramento, CA United States
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Melissa Nifenecker

St. Joseph's Regional Cancer Center
Stockton, CA United States
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Melissa Nifenecker

Ashwin Kashyap MD, INC.
Thousand Oaks, CA United States
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Melissa Nifenecker

Saint Joseph Hospital, Cancer Centers of Colorado
Denver, CO United States
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Melissa Nifenecker

MCDA - Medical Oncology and Blood Disorders
Manchester, CT United States
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Melissa Nifenecker

Bennett Cancer Center Stamford Hospital
Stamford, CT United States
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Melissa Nifenecker

Delaware Clinical and Laboratory Physicians
Christiana, DE United States
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Melissa Nifenecker

Washington Cancer Institute
Washington, D.C., United States
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Melissa Nifenecker

University Cancer Institute
Boynton Beach, FL United States
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Melissa Nifenecker

Halifax Health Center for Oncology
Daytona Beach, FL United States
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Melissa Nifenecker

Broward Oncology Associates
Fort Lauderdale, FL United States
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Melissa Nifenecker

Holy Cross Hospital
Fort Lauderdale, FL United States
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Melissa Nifenecker

Southeast FL Hematology Oncology Grp
Fort Lauderdale, FL United States
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Melissa Nifenecker

Broward Health Medical Center
Fort Lauderdale, FL United States
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Melissa Nifenecker

University of Florida & Shands Hospital
Gainesville, FL United States
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Melissa Nifenecker

University of Florida College of Medicine
Jacksonville, FL United States
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Melissa Nifenecker

Cancer Specialists of North Florida
Jacksonville, FL United States
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Melissa Nifenecker

Watson Clinic Center for Cancer Care and Research
Lakeland, FL United States
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Melissa Nifenecker

Cancer and Blood Disease Center
Lecanto, FL United States
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Melissa Nifenecker

21st Century Oncology
Orange Park, FL United States
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Melissa Nifenecker

Florida Hospital Cancer Institute
Orlando, FL United States
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Melissa Nifenecker

Memorial Healthcare System
Pembroke Pines, FL United States
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Melissa Nifenecker

Sacred Heart Medical Oncology Group
Pensacola, FL United States
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Melissa Nifenecker

Cancer Care Centers of Brevard
Rockledge, FL United States
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Melissa Nifenecker

Tallahassee Memorial Cancer Center
Tallahassee, FL United States
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Melissa Nifenecker

Space Coast Medical Associates
Titusville, FL United States
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Melissa Nifenecker

Bond Clinic
Winter Haven, FL United States
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Melissa Nifenecker

Phoebe Putney Memorial Hospital
Albany, GA United States
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Melissa Nifenecker

Piedmont Cancer Institute, P.C. (was Peachtree Hematology-Oncology Consultants)
Atlanta, GA United States
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Melissa Nifenecker

Emory University
Atlanta, GA United States
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Melissa Nifenecker

Georgia Regents University Cancer Center
Augusta, GA United States
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Melissa Nifenecker

Southeast Georgia Health System
Brunswick, GA United States
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Melissa Nifenecker

John B. Amos Cancer Center
Columbus, GA United States
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Melissa Nifenecker

Northwest Georgia Oncology Centers, P.C.
Marietta, GA United States
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Melissa Nifenecker

Saint Alphonsus Regional Medical Center
Boise, ID United States
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Melissa Nifenecker

Hektoen Inst for Medical Resrch on behalf of itself and John H Stroger Hosp
Chicago, IL United States
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Melissa Nifenecker

RUSH University Cancer Center
Chicago, IL United States
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Melissa Nifenecker

NorthShore University Health System
Evanston, IL United States
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Melissa Nifenecker

Ingalls Memorial Hospital
Harvey, IL United States
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Melissa Nifenecker

Joliet Oncology Hematology Associates Ltd
Joliet, IL United States
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Melissa Nifenecker

Oncology Specialists, SC
Niles, IL United States
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Melissa Nifenecker

Illinois Cancer Care
Peoria, IL United States
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Melissa Nifenecker

Quincy Medical Group
Quincy, IL United States
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Melissa Nifenecker

Orchard Healthcare Research Inc.
Skokie, IL United States
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Melissa Nifenecker

Simmons Cancer Institute at Southern Illinois University
Springfield, IL United States
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Melissa Nifenecker

Carle Cancer Center
Urbana, IL United States
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Melissa Nifenecker

St. Vincent Anderson Regional Hospital Research
Anderson, IN United States
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Melissa Nifenecker

IU health Bloomington Hospital
Bloomington, IN United States
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Melissa Nifenecker

Horizon Oncology Research, Inc
Lafayette, IN United States
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Melissa Nifenecker

Floyd Memorial Cancer Center of Indiana
New Albany, IN United States
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Melissa Nifenecker

Oncology Hematology Associates of Southwest Indiana
Newburgh, IN United States
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Melissa Nifenecker

Northern Indiana Cancer Research Consortium
South Bend, IN United States
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Melissa Nifenecker

Good Samaritan Hospital - Wabash Valley Clinical Research Center
Vincennes, IN United States
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Melissa Nifenecker

McFarland Clinic, P.C
Ames, IA United States
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Melissa Nifenecker

Siouxland Hematology-Oncology Associates
Sioux City, IA United States
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Melissa Nifenecker

Covenant Clinic
Waterloo, IA United States
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Melissa Nifenecker

Cotton O'Neil Clinical Research/ Stormont Vail Health
Topeka, KS United States
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Melissa Nifenecker

Cancer Center of Kansas
Wichita, KS United States
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Melissa Nifenecker

Ashland-Bellefonte Cancer Center
Ashland, KY United States
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Melissa Nifenecker

Baptist Health Lexington
Lexington, KY United States
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Melissa Nifenecker

Mary Bird Perkins Cancer Center (Baton Rouge)
Baton Rouge, LA United States
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Melissa Nifenecker

Our Lady of the Lake Physician Group-Medical Oncology
Baton Rouge, LA United States
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Melissa Nifenecker

Mary Bird Perkins Cancer Center at St. Tammany
Covington, LA United States
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Melissa Nifenecker

Maine Research Associates/Central Maine Medicine
Lewiston, ME United States
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Melissa Nifenecker

Weinberg Cancer Institute at Franklin Square
Baltimore, MD United States
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Melissa Nifenecker

Center for Cancer and Blood Disorders
Bethesda, MD United States
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Melissa Nifenecker

Maryland Oncology Hematology
Columbia, MD United States
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Melissa Nifenecker

Western Maryland Health System
Cumberland, MD United States
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Melissa Nifenecker

Carroll Regional Cancer Center
Westminster, MD United States
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Melissa Nifenecker

Dana-Farber Cancer Institute
Boston, MA United States
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Melissa Nifenecker

Cape Cod Hospital
Hyannis, MA United States
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Melissa Nifenecker

Oakwood Healthcare Inc.
Dearborn, MI United States
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Melissa Nifenecker

John D. Dingell VA Medical Center /Cynthia Marbury
Detroit, MI United States
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Melissa Nifenecker

Henry Ford Health System
Detroit, MI United States
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Melissa Nifenecker

Detroit Clinical Research Center
Farmington Hills, MI United States
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Melissa Nifenecker

Genesys Hurley Cancer Institute
Flint, MI United States
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Melissa Nifenecker

Cancer and Hematology Centers of Western Michigan
Grand Rapids, MI United States
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Melissa Nifenecker

Great Lakes Cancer Management
Grosse Pointe Woods, MI United States
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Melissa Nifenecker

West Michigan Cancer Center
Kalamazoo, MI United States
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Melissa Nifenecker

Michigan State University/Breslin Cancer Center
Lansing, MI United States
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Melissa Nifenecker

St. John Providence Hospital System
Southfield, MI United States
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Melissa Nifenecker

Essentia Health Oncology Clinical Trials
Duluth, MN United States
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Melissa Nifenecker

Southdale Cancer Clinic
Edina, MN United States
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Melissa Nifenecker

Metro MN CCOP/Park Nicollet Institute
Saint Louis Park, MN United States
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Melissa Nifenecker

MCDA - Central Care Center
Bolivar, MO United States
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Melissa Nifenecker

Southeast Cancer Center
Cape Girardeau, MO United States
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Melissa Nifenecker

Harry S Truman Memorial Veterans' Hospital
Columbia, MO United States
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Melissa Nifenecker

Columbia Comprehensive Cancer Care Clinic
Jefferson City, MO United States
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Melissa Nifenecker

Kansas City Veterans Affairs Medical Center
Kansas City, MO United States
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Melissa Nifenecker

Research Medical Center
Kansas City, MO United States
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Melissa Nifenecker

Heartland Regional Medical Center (Heartland Health)
Saint Joseph, MO United States
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Melissa Nifenecker

Missouri Baptist Medical Center
Saint Louis, MO United States
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Melissa Nifenecker

Billings Clinic
Billings, MT United States
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Melissa Nifenecker

St. Vincent Frontier Cancer Center
Billings, MT United States
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Melissa Nifenecker

Montana Cancer Institute Foundation
Missoula, MT United States
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Melissa Nifenecker

Southeast Nebraska Cancer Center
Lincoln, NE United States
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Melissa Nifenecker

Southern Nevada Cancer Research Foundation
Las Vegas, NV United States
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Melissa Nifenecker

Renown Regional Medical Center
Reno, NV United States
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Melissa Nifenecker

VA Medical Center Manchester
Manchester, NH United States
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Melissa Nifenecker

Drs. Forte, Schleider & Attas, PA
Englewood, NJ United States
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Melissa Nifenecker

John Theurer Cancer Center (Hackensack U Med Center)
Hackensack, NJ United States
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Melissa Nifenecker

Hematology-Oncology Associates of Northern New Jersey
Morristown, NJ United States
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Melissa Nifenecker

Saint Peter's University Hospital
New Brunswick, NJ United States
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Melissa Nifenecker

St Joseph Healthcare System
Paterson, NJ United States
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Melissa Nifenecker

Somerset Medical Center 110 Rehill Avenue
Somerville, NJ United States
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Melissa Nifenecker

Sparta Cancer Center
Sparta, NJ United States
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Melissa Nifenecker

Maimonides Cancer Center
Brooklyn, NY United States
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Melissa Nifenecker

Bassett Heathcare Network
Cooperstown, NY United States
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Melissa Nifenecker

Hematology Oncology Associates of Central NY
East Syracuse, NY United States
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Melissa Nifenecker

C.R. Wood Cancer Center at Glens Falls Hospital
Glens Falls, NY United States
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Melissa Nifenecker

Huntington Medical Group
Huntington Station, NY United States
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Melissa Nifenecker

Weill Cornell Medical College
New York, NY United States
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Melissa Nifenecker

Rochester General Hospital
Rochester, NY United States
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Melissa Nifenecker

St. Francis Hospital
Roslyn, NY United States
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Melissa Nifenecker

Albert Einstein College of Medicine - Montefiore Medical Center
The Bronx, NY United States
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Melissa Nifenecker

Eastchester Center for Cancer Care
The Bronx, NY United States
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Melissa Nifenecker

New York Medical College
Valhalla, NY United States
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Melissa Nifenecker

Ccs Oncology
Williamsville, NY United States
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Melissa Nifenecker

Leo W Jenkins Cancer Center
Greenville, NC United States
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Melissa Nifenecker

Kinston Medical Specialists
Kinston, NC United States
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Melissa Nifenecker

Wake Forest Baptist Health
Winston-Salem, NC United States
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Melissa Nifenecker

Summa Health System
Akron, OH United States
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Melissa Nifenecker

Gabrail Cancer Center Research
Canton, OH United States
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Melissa Nifenecker

TriHealth, Good Samaritan Hospital
Cincinnati, OH United States
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Melissa Nifenecker

University Hospitals, Case Medical Center
Cleveland, OH United States
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Melissa Nifenecker

Cleveland Clinic Foundation
Cleveland, OH United States
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Melissa Nifenecker

Mid Ohio Oncology/Hematology, Inc., dba The Mark H. Zangmeister Center
Columbus, OH United States
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Melissa Nifenecker

University of Toledo Medical Center (Utmc)
Toledo, OH United States
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Melissa Nifenecker

INTEGRIS Cancer Institute Southwest Medical Center
Oklahoma City, OK United States
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Melissa Nifenecker

INTEGRIS Cancer Institute of Oklahoma Proton Campus
Oklahoma City, OK United States
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Melissa Nifenecker

Oklahoma Cancer Specialist and Research Institute
Tulsa, OK United States
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Melissa Nifenecker

Good Samaritan Hospital Corvallis
Corvallis, OR United States
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Melissa Nifenecker

Providence Cancer Center
Portland, OR United States
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Melissa Nifenecker

Salem Health
Salem, OR United States
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Melissa Nifenecker

Consultants in Medical Oncology and Hematology
Drexel Hill, PA United States
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Melissa Nifenecker

Hematology and Oncology Assoc of NEPA
Dunmore, PA United States
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Melissa Nifenecker

Lancaster Cancer Center
Lancaster, PA United States
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Melissa Nifenecker

Lancaster General Hospital
Lancaster, PA United States
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Melissa Nifenecker

Allegheny Singer Research Institute (was West Penn Hospital)
Pittsburgh, PA United States
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Melissa Nifenecker

University of Pittsburgh Cancer Institute
Pittsburgh, PA United States
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Melissa Nifenecker

Roger Williams Medical Center
Providence, RI United States
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Melissa Nifenecker

Charleston Hematology Oncology Associates, PA
Charleston, SC United States
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Melissa Nifenecker

GHS Cancer Institute
Greenville, SC United States
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Melissa Nifenecker

Spartanburg Regional Medical Center
Spartanburg, SC United States
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Melissa Nifenecker

Prairie Lakes Health Systen, Inc
Watertown, SD United States
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Melissa Nifenecker

University of Tennessee Medical Center Cancer Intitute
Knoxville, TN United States
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Melissa Nifenecker

Vanderbilt-Ingram Cancer Center
Nashville, TN United States
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Melissa Nifenecker

Hendrick Cancer Center
Abilene, TX United States
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Melissa Nifenecker

BSL Health System (Harrington Cancer Center)
Amarillo, TX United States
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Melissa Nifenecker

Texas Oncology, Amarillo Cancer Center
Amarillo, TX United States
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Melissa Nifenecker

Coastal Bend Cancer Center
Corpus Christi, TX United States
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Melissa Nifenecker

Christus Spohn Cancer Center
Corpus Christi, TX United States
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Melissa Nifenecker

HOLD - Texas Oncology, Dallas
Dallas, TX United States
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Melissa Nifenecker

UTMB Galveston
Galveston, TX United States
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Melissa Nifenecker

Southwest Cancer Treatment & Research Center
Lubbock, TX United States
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Melissa Nifenecker

Texas Oncology, McAllen (plus 2 satelite sites)
McAllen, TX United States
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Melissa Nifenecker

Scott & White Healthcare
Round Rock, TX United States
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Melissa Nifenecker

Scott & White Memorial Hospital
Temple, TX United States
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Melissa Nifenecker

Blood and cancer Center of East Texas
Tyler, TX United States
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Melissa Nifenecker

Northern Utah Associates
Ogden, UT United States
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Melissa Nifenecker

Foley Cancer Center/RRMC
Rutland, VT United States
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Melissa Nifenecker

VA Medical Center - White River Junction
White River Junction, VT United States
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Melissa Nifenecker

Lynchburg Hematology Oncology Clinic
Lynchburg, VA United States
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Melissa Nifenecker

Peninsula Cancer Institute
Newport News, VA United States
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Melissa Nifenecker

PeaceHealth St Joseph Cancer Center
Bellingham, WA United States
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Melissa Nifenecker

Providence Regional Cancer Partnership
Everett, WA United States
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Melissa Nifenecker

Kadlec Regional Medical Center (KRMC)
Kennewick, WA United States
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Melissa Nifenecker

Vista Oncology Inc. PS
Olympia, WA United States
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Melissa Nifenecker

Benaroya Research Institute at Virginia Mason
Seattle, WA United States
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Melissa Nifenecker

Swedish Cancer Institute
Seattle, WA United States
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Melissa Nifenecker

Providence St. Mary Regional Cancer Center
Walla Walla, WA United States
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Melissa Nifenecker

West Virginia University
Morgantown, WV United States
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Melissa Nifenecker

St. Vincent Hospital
Green Bay, WI United States
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Melissa Nifenecker

Bellin Memorial Hospital/ Bellin Cancer Team
Green Bay, WI United States
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Melissa Nifenecker

Gundersen Lutheran Inc
La Crosse, WI United States
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Melissa Nifenecker

Froedtert & Medical College of Wisconsin CLCC
Milwaukee, WI United States
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Melissa Nifenecker

Columbia St. Mary'S
Milwaukee, WI United States
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Melissa Nifenecker

Wheaton Franciscan Cancer Care - All Saints
Racine, WI United States
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Melissa Nifenecker

Waukesha Memorial Hospital
Waukesha, WI United States
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Melissa Nifenecker

Memorial Hospital of Laramie County dba Cheyenne Regional Medical Center
Cheyenne, WY United States
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Melissa Nifenecker

Puerto Rico Hematology Oncology Group
Bayamon, Puerto Rico
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Melissa Nifenecker

VA Caribbean Healthcare System CRADA
San Juan, Puerto Rico
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Melissa Nifenecker

Fundacion de lnvestigaci6n
San Juan, Puerto Rico
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