Last updated on October 2016

C1 Inhibitor Registry in the Treatment of Hereditary Angioedema (HAE) Attacks


Brief description of study

This is a non-interventional treatment Registry of Hereditary Angioedema (HAE) patients treated with C1 inhibitor, either plasma-derived (pdC1INH) or the recombinant human form (Ruconest), to observe adverse events and insufficient efficacy, and to assess the immunological profile following single and repeated treatment with Ruconest.

Detailed Study Description

see below

Clinical Study Identifier: NCT01397864

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Maria Staevska, Prof.

UMHAT Alexandrovska EAD
Sofia, Bulgaria
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Roman Hakl, Dr.

Faculty Hospital by St. Anna Brno
Brno, Czech Republic
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Laurence Bouillet, Prof. Dr.

Hospital A Michallon, CHU Grenoble
La Tronche, France
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Marcus Maurer, Prof.

Charite Universitatsmedizin Berlin
Berlin, Germany
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Henriette Farkas, Prof.

Semmelweis University, 3rd Department of Internal Medicine
Budapest, Hungary
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Marco Cicardi, Prof.

Ospedale Luigi Sacco
Milan, Italy
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Robert Brudevold, Dr.

Alesund Hospital
Alesund, Norway
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Ellen Pritzier, Dr.

Stavanger University Hospital
Stavanger, Norway
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Krystyna Obtulowicz, Prof.

University Hospital Krakow
Krakow, Poland
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Katarina Hrubiskova, Dr.

Bratislava University Hospital
Bratislava, Slovakia
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Milos Jesenak, Prof.

University Hospital Martin
Martin, Slovakia
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Janne Bjorkander, Prof.

Ryhof County Hospital
Jonkoping, Sweden
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