Last updated on August 2018

Firazyr Patient Registry (Icatibant Outcome Survey - IOS)


Brief description of study

The Firazyr and Cinryze Patient Registry is a prospective, observational study designed to document the routine clinical outcomes over time in patients with angioedema treated with Firazyr and/or Cinryze in countries where it is currently approved. The data collected will be used to evaluate the safety of Firazyr and Cinryze in routine clinical practice and as a data source for post-marketing investigations.

Detailed Study Description

The Firazyr and Cinryze patient registry is a multicenter, prospective, observational study for patients treated with Firazyr and/or Cinryze in countries where it is currently approved. The entry of participants in the Firazyr and Cinryze Registry is at the discretion of the physician and the participant and is not a pre-requisite for prescribing Firazyr or Cinryze.

Clinical Study Identifier: NCT01034969

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Werner Aberer, Prof. Dr

Medizinische Universit t Graz
Graz, Austria
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Roman Hakl, MD

Fakultni nemocnice u sv. Anny v Brne
Brno, Czech Republic
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Odense Universitetshospital
Odense, Denmark
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David Launay, MD

CHRU Lille
Lille, France
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Ludovic Martin, MD

CHU Angers
Angers Cedex 10, France
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Stéphane Guez, MD

Centre Hospitalier Universitaire de Bordeaux, Hopital Pellegrin
Bordeaux, France
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Laurence Bouillet

CHU de Grenoble
Grenoble, France
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CHU de Nancy-Hopital Brabois Adulte
Nancy, France
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Lucile Sorin, MD

Centre Hospitalier Georges Renon
Niort, France
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H tel Dieu de Paris Hospital
Paris, France
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Anne Gompel, MD

Hopital Cochin
Paris, France
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Hopital Purpan
Toulouse, France
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Emel Aygören-Pürsün, MD

Klinikum der Johann-Wolfgang Goethe-Universitat
Frankfurt, Germany
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Markus Magerl, MD

Charit - Universit tsmedizin Berlin
Berlin, Germany
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Universit tsklinikum Essen
Essen, Germany
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Konrad Bork, MD

Universit tsmedizin der Johannes Gutenberg-Universit t Mainz
Mainz, Germany
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Efimia Papadopoulou Alataki, MD

Papageorgiou General Hospital of Thessaloniki
Thessaloniki, Greece
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Elias Toubi, MD

Bnai Zion Medical Center
Haifa, Israel
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Nancy Agmon-Levin, MD

Chaim Sheba Medical Center
Ramat-Gan, Israel
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Shmuel Kivity, MD

Tel Aviv Sourasky Medical Center
Tel Aviv, Israel
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Arturo Genovese, MD

Azienda Ospedaliera Universitaria Federico II
Napoli, Italy
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Anna Maria Di Palma, MD

AO Ospedale Policlinico Consorziale Di Bari
Bari, Italy
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Paolo E Manconi

Presidio Policlinico De Monserrato
Monserrato, Italy
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Andrea Zanichelli, MD

ASST Fatebenefratelli Sacco - Ospedale Luigi Sacco
Milano, Italy
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Francesco Arcoleo, MD

Azienda Ospedaliera Ospedali Riuniti Villa Sofia-Cervello
Palermo, Italy
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Carlos Hernando de Larramendi, MD

Hospital de La Marina Baixa
Villajoyosa, Spain
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Hospital Cruz Roja Espa ola de Gij n
Gijon, Spain
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Blanca Saenz de San Pedro, ...

Complejo Hospitalario de Jaen
Jaen, Spain
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Ramon Lleonart

Hospital Bellvitge
L'Hospitalet de Llobregat, Spain
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Lluis Marques, MD

Hospital de Santa Maria
Lleida, Spain
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Teofilo Lobera, MD

Centro de Alta Resoluci n de Procesos Asistenciales (C.A.R.P.A.)
Logrono, Spain
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Maria Luisa Baeza, MD, PhD

Hospital General Universitario Gregorio Mara on
Madrid, Spain
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M Teresa Caballero, MD

Hospital Universitario La Paz
Madrid, Spain
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Dolores Hernandez, MD

Hospital Universitari i Politecnic La Fe de Valencia
Valencia, Spain
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Tariq El-Shanawany, MBBS, MD, MRCPCH, ...

University Hospital of Wales
Cardiff, United Kingdom
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Sorena Kiani, FRCP, FRCPath, PhD

Royal London Hospital
London, United Kingdom
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Suranjith Seneviratne, MD

Royal Free Hospital
London, United Kingdom
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Catherine Stroud, MD

Royal Victoria Infirmary
Newcastle Upon Tyne, United Kingdom
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Claire Bethune, MD

Derriford Hospital
Plymouth, United Kingdom
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Constance Katelaris, MD, PhD

Campbelltown Hospital
Campbelltown, Australia
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William Smith, MD, MBBS, FRACP, ...

Royal Adelaide Hospital
Adelaide, Australia
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Anete Grumach, MD

Faculdade de Medicina Do ABC
Santo André, Brazil
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Hopital de Hautepierre
Strasbourg, France
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Hopital Cote de Nacre
Caen, France
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Laurence Bouillet, MD

CHU de GRENOBLE
Grenoble, France
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Herve Maillard, MD

Centre Hospitalier Le Mans
Le Mans cedex 9, France
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Magali Aubineau, MD

Groupement Hospitalier Edouard Herriot
Lyon, France
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CHU Montpellier - H pital St Eloi
Montpellier, France
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Hotel Dieu
Nantes, France
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Pierre-Yves Jeandel, MD

CHU de Nice Archet I
Nice, France
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Olivier Fain, MD

H pital Saint Antoine
Paris, France
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CHU de Reims
Reims, France
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Centre Hospitalier Universitaire de Saint Etienne
Saint-Etienne, France
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Ulrich Strassen, MD

Hals-Nasen-Ohrenklinik und Poliklinik
München, Germany
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Andrea Bauer, MD

Universit tsklinikum Carl Gustav Carus
Dresden, Germany
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Inmaculada Martinez, MD

H mophilie Zentrum Rhein Main GmbH
Mörfelden-Walldorf, Germany
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Jens Greve, MD

Universit tsklinikum Ulm
Ulm, Germany
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Fotios Psarros, MD

Navy Hospital of Athens
Athens, Greece
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Rabin Medical Center - PPDS
Petach Tikva, Israel
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Maria Pina Barca, MD

Presidio Policlinico Di Monserrato
Monserrato, Italy
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Universita degli Studi di Padova
Padova, Italy
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CHUS - H. Clinico U. de Santiago
Santiago de Compostela, Spain
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Ramon Lleonart, MD

Hospital Universitario de Bellvitge
L'Hospitalet de Llobregat, Spain
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Mar Guilarte, MD, PhD

Hospital Universitario Vall d'Hebron - PPDS
Barcelona, Spain
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Hospital Clinico San Carlos
Madrid, Spain
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Hospital Universitario Virgen del Rocio
Sevilla, Spain
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Complejo Hospitalario Universitario de Vigo
Vigo, Spain
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L nssjukhuset Ryhov
Jönköping, Sweden
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Rashmi Jain, MD

John Radcliffe Hospital
Oxford, United Kingdom
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Sinisa Savic, MD, PhD

St James University Hospital
Leeds, United Kingdom
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Tomaz Garcez Pereira, MD

Manchester Royal Infirmary
Manchester, United Kingdom
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