Last updated on February 2018

Firazyr Patient Registry Protocol (Icatibant Outcome Survey - IOS)


Brief description of study

The Firazyr Patient Registry is a prospective, observational study designed to document the routine clinical outcomes over time in patients treated with Firazyr in countries where it is currently approved. The data collected will be used to evaluate the safety of Firazyr in routine clinical practice and as a data source for post-marketing investigations.

Detailed Study Description

The Firazyr Patient Registry is a multicenter, prospective, observational study for patients treated with Firazyr in countries where it is currently approved. The entry of patients into the Firazyr Registry is at the discretion of the physician and the patient and is not a pre-requisite for prescribing Firazyr.

Clinical Study Identifier: NCT01034969

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Werner Aberer, MD

Medizinische Universit t Graz
Graz, Austria
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Anete Grumach, MD

Faculdade de Medicina Do ABC
Sao Paulo, Brazil
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Roman Hakl, MD

Fakultni nemocnice u sv. Anny v Brne
Brno, Czech Republic
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Anette Bygum

Odense Universitetshospital
Odense, Denmark
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CHU H pital de la Cote de Nacre
Caen, France
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David Launay, MD

CHRU Lille
Lille, France
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Ludovic Martin, MD

CHU Angers
Angers Cedex 10, France
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Stéphane Guez, MD

Centre Hospitalier Universitaire de Bordeaux, Hopital Pellegrin
Bordeaux, France
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Laurence Bouillet

CHU de Grenoble
Grenoble, France
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Herve Maillard, MD

Centre Hospitalier Le Mans
Le Mans, France
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Brigette Coppere

Groupement Hospitalier Edouard Herriot
Lyon Cedex 3, France
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Aurelie Du Thanh, MD

CHU Montpellier - H pital St Eloi
Montpellier cedex 5, France
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Gisele Kanny

CHU de Nancy-Hopital Brabois Adulte
Nancy, France
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CHU Hotel Dieu
Nantes, France
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Pierre-Yves Jeandel

CHU H pital l'Archet 1
Nice, France
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Blanchard Blanchard Delaunay, MD

Centre Hospitalier Georges Renon
Niort, France
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Olivier Fain, MD

H pital Saint Antoine
Paris Cedex 12, France
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H tel Dieu de Paris Hospital
Paris, France
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Anne Gompel, MD, PhD

Hopital Cochin
Paris, France
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Centre Hospitalier Universitaire de Saint Etienne
St. Etienne, France
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Bernard Goichot, MD

CHU H pital de Hautepierre
Strasbourg, France
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Hopital Purpan
Toulouse, France
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Emel Aygören-Pürsün, MD

Klinikum der Johann-Wolfgang Goethe-Universitat
Frankfurt, Germany
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Markus Magerl, MD

Charit - Universit tsmedizin Berlin
Berlin, Germany
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Andrea Bauer, MD

Universit tsklinikum Carl Gustav Carus an der Technischen Universit t Dresden
Dresden, Germany
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Judith Armolds

Universit tsklinikum Essen
Essen, Germany
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Konrad Bork

Universit tsmedizin der Johannes Gutenberg-Universit t Mainz
Mainz, Germany
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Jens Greve, MD

Universitsklinikum Ulm
Ulm, Germany
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Fotios Psarros

Naval Hospital of Athens
Athens, Greece
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Efimia Papadopoulou Alataki

Papageorgiou General Hospital of Thessaloniki
Thessaloniki, Greece
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Elias Toubi, MD

Bnai Zion Medical Center
Haifa, Israel
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Rabin Medical Center
Petach Tikva, Israel
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Avner Reshef, MD

Chaim Sheba Medical Center
Ramat-Gan, Israel
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Shmuel Kivity, MD

Tel Aviv Sourasky Medical Center
Tel Aviv, Israel
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Gianni Marone, MD

Azienda Ospedaliera Universitaria Federico II
Napoli, Italy
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Vincenzo Montinaro

AO Ospedale Policlinico Consorziale Di Bari
Bari, Italy
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Paolo E Manconi

Presidio Policlinico De Monserrato
Monserrato, Italy
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Marco Cicardi

ASST Fatebenefratelli Sacco - Ospedale Luigi Sacco
Milano, Italy
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Universit degli Studi di Padova
Padova, Italy
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Francesco Arcoleo, MD

Azienda Ospedaliera Ospedali Riuniti Villa Sofia-Cervello
Palermo, Italy
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Carlos Hernando de Larramendi

Hospital de La Marina Baixa
Villajoyosa, Spain
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Mar Guilarte, MD, PhD

Hospital Universitario Vall d'Hebron
Barcelona, Spain
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Hospital Cruz Roja Espa ola de Gij n
Gijon, Spain
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Blanca Saenz de San Pedro, ...

Complejo Hospitalario de Jaen
Jaen, Spain
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Ramon Lleonart

Hospital Bellvitge
L'Hospitalet de Llobregat, Spain
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Lluis Marques, MD

Hospital de Santa Maria
Lleida, Spain
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Teofilo Lobera

Centro de Alta Resoluci n de Procesos Asistenciales (C.A.R.P.A.)
Logrono, Spain
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Maria Luisa Baeza

Hospital General Universitario Gregorio Mara on
Madrid, Spain
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M. Teresa Caballero

Hospital Universitario La Paz
Madrid, Spain
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Dolores Hernandez, MD

Hospital Universitari i Politecnic La Fe de Valencia
Valencia, Spain
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Tariq El-Shanawany

University Hospital of Wales
Cardiff, United Kingdom
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Sinisa Savic, MD

St. James University Hospital
Leeds, United Kingdom
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Hilary Longhurst

Royal London Hospital
London, United Kingdom
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Suranjith Seneviratne, MD

Royal Free Hospital
London, United Kingdom
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Catherine Stroud, MD

Royal Victoria Infirmary
Newcastle Upon Tyne, United Kingdom
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Claire Bethune, MD

Derriford Hospital
Plymouth, United Kingdom
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Ulrich Strassen, MD

Hals-Nasen-Ohrenklinik und Poliklinik
München, Germany
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Inmaculada Martinez, MD, PhD

H mophilie Zentrum Rhein Main GmbH
Mörfelden-Walldorf, Germany
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L nssjukhuset Ryhov
Jönköping, Sweden
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